How much more can you take. I have been away on Government travel to Galveston, TX. Tried to check the status as much as I could. One day this and the next day that. You are a strong man. You will beat this.
Our prayers continue to flow in for you. You are on everyone’s prayer list in every church around. The Lord is with you and with his help, you thru pull thru.
Doctor wants you to walk and get strong. Grab Martha and take her for a stroll. Tell her you love her and how much you appreciate her being there with you. This keeps your mind thinking while you walk and strength will follow.
Wish I could do something or even give my liver up to you. But, I can continue from this end for leave donors and prayers.
Hang in there man and remember we love you and pray everyday for your health.
WELD score? Why would anyone be interested in Scott’s WELD score? They don’t weld the transplant in. And even if they did, Scott wouldn’t be welding, the doctor would. So they should want to know the doctor’s WELD score.
Transplant welding…that’s just … What?
MELD score? Oh that’s different then. Never mind.
Yay transplant list! Okay, now that it’s T minus something again we’ll all play the waiting game. All our hopes and best wishes are with you and the whole family…
Sorry I left a comment under 1 I didn’t read Martha’s comment about leaving it here instead of comments 1 so from now on we will leave our comments here Martha thank you sooooo much for updating this sight we check it everyday
Kim
You had a few ‘Eastern Shore folks’ here praying for you tonight. Our bible study group is wishing you the best with this latest challenge. Martha, our prayers are with you too, may you both continue in great strength!
Joel and family and friends - happy valentines day…..
We continue to appreciate all the support and prayers. Please keep them coming!
This afternoon we sat with a friend from the transplant community whose husband was in the process of surgery to remove his stomach (a long-term complication of his liver transplant). It was a strong reminder for me of how much worse things could be. It also reminded me that Martha will soon sit in that same room for many stressful hours for a second time. What good things must I have done in a former life to deserve a wife like her?
Well, it’s time to go stretch my legs with a walk. Hope you all enjoyed your VD.
You know they got shots for that VD thing now? We had a fun one. Went to the Birchmere … to see Burlesque-a-pades .. neo-burlesque. And, surprise surprise, we saw SteelEye.
Try to keep smiling. Hey, you had your sweetheart with you for the day. That’s a real positive.
And Martha, its not the surroundings, or the food, its being in the company of your Love that is the romance.
You know they got shots for that VD thing now? We had a fun one. Went to the Birchmere … to see Burlesque-a-pades .. neo-burlesque. And, surprise surprise, we saw SteelEye there (in the audience, NOT on stage).
Try to keep smiling. Hey, you had your sweetheart with you for the day. That’s a real positive.
And Martha, its not the surroundings, or the food, its being in the company of your Love that is the romance.
Hey Scott, We are away in Chile visiting with Any and Rodrigo (Chris’s AFS sister/friend). We will keep checking your web page and check in on you. Keep getting stronger. We will call you when we get home on March 1. Love to you and Martha.
D & D
Scott & Martha, I can’t tell you how awesome it was to visit with you guys last weekend! It boosted my spirits as well; seeing you walk with strength and laughing hard like we always have! Your hearing may be a little off, but your sense of humor is still tops! Greg and I ran to catch the metro and I almost flipped over the entry gate. ugh! Of course it was Greg’s gate, not mine, which is why I now have this bruise on my thigh and sore muscles from laughing so hard. Greg was no help, as usual. haha. Prayer and happy thoughts to both of you!
Love, Chris
Oh, THANK GOODNESS Scott is coming home. That must be a huge relief to you both. YEAH! The kids must be ecstatic. See! What a great Valentine’s Day present! they just must have waited for the ice to decrease a bit!
Great news!! The second hand adrenalin rush is crazy enough, I know it is even more intense for you all. Hurry up and wait is the order of the day. I don’t really understand it, but I am so happy Scott is coming home. Kathleen is recovering from strep so we’ll keep our distance for a bit until we’re sure no one else is affected. We miss you guys. Love to all,
Jeannie and family
I have really enjoyed the pictures Martha. It means so much to see Scott smiling, getting a hair cut, water skiing, lying in bed. Pictures are like progress. The ups and the downs. Okay, how come we never get to see pictures of you Martha and you and Scott together. Someone there in that JH can take a picture of the two of you together. Keep them coming sweetheart they are great.
The ice is melting and the sun is shining and hopefully Scott is coming home. Keep in touch and send pictures.
Nice to hear he’s home again. Girls, you need to help your mom. Clean your rooms. Sorry, I couldn’t come to see you four. We’re thinking and praying for you. Love, Mary and the boys.
Hi Scott and Martha, everytime I call Bolivia (and that’s very often…Jesse thinks I should just go there every month…”it would be cheaper” before i say any thing the question is, “how is the cousin?” I keep telling them to write to you directly…but they are shy…in Spanish… this is just to let you know of all the thoughts and prayers that come from South of the border and beyond… Martha, here comes one more thanks! for all this effort to keep us informed…gosh! we’re constantly checking this website, always with the hope of good, good, good news and thinking of you all.
It was great to finally be healthy enough to visit you again. And what a bonus to do it AT HOME.
You are looking good, all things considered. And I hope, at some point, you can appreciate the RESTRAINT shown for not playing with the conversation volume. Hopefully the hearing will start to straighten itself out soon.
Take care friend and bask in all the positive thoughts (and warmer temps) beaming your way.
Good morning Scott from the gang at Goddard. Glad you made it home, got the pic line fixed and the fevers are down. Hearing will improved over time. Being a nurse I have seen this happen before. But, it takes time and I mean a lot of time. So please be patient.
Martha, yes sweetheart it is hard on you trying to be the wife, nurse, mother, worker, maid and everything else. You are one of the blessed ones that can do it. You are a strong women. Of course, my children are grown. They still come to me for help. So do five grandchildren. Trying to take care of my mental case husband and all his health problems, working two jobs, running him back and forward to doctors and hospitals and keeping up with my cake business, cleaning, cooking, and a minute a day for myself. I know just what you are going through. But God made women strong to deal with all the problems and we adjust and do it. Hang in there. The rewards will be worth it.
Keep showing those signs of improvement Scott. We all love you and all the prayers are continuing for you.
Just wanted to let you know you are in my thoughts and prayers. I’m pulling for you to get that new liver SOON! I’m about 6 days away from the new baby being here, so unfortunately I can’t come help out. But know that I’m holding you both close in my heart.
This is what I see in the future……….a nice strong healthy liver that someone didn’t need anymore and gave it to Gallen because he needs it. I also see a problem- free installation;as easy as getting a new tire on a car…..is everyone with me??? Recovery time - piece of cake {not a piece of liver!},don’t blink ‘cuz Scott will have to shovel snow in no time. I LOVE LIVER!!!!If you have ever eaten liver in this lifetime - stop it! Think of what the liver does for work -don’t eat it, respect it! Honor the liver and one will show up……if I happen to bump into a liver on the street tomorrow, I’ll hug it and say “thanks!”
Proving once again that it’s a good idea to marry a woman smarter than yourself, my lovely bride suggests that you put a second TV next to Scott’s where you can adjust the sound for YOU to hear. The “sound TV” can be a small set, like a 13 inch — you don’t even need to look at the screen.
Wouldn’t help with movies, though, but it would allow you to watch programs.
No snow did not stop me from coming to work. Others though are late. Roads were cleared.
How about you? Sounds like you are up and about. Sorry about your hearing. But, most husbands would like that because they wouldn’t have to listen to their wives. ha ha All jokes aside, I do hope it gets better and soon.
Martha, we love the pictures. Keep them coming. It is so easy to read and look at a picture and to relate to it. Yes we would like to see the wedding pictures. Oh yes pictures of Scott as a baby. I bet he was a cute little boy. Probably one of those big tease boys.
Got to run. Continue to improve. God bless and the prayers will continue for you and your family.
Love & blessings to you all!
Scott, we received an email copy from your Dad & Stepmom with your address on it. Didn’t know exactly what your ailment was, and can certainly understand the trials each of you are going through since doing much of the similar with our family’s Leukemic trial. Have placed your family on our church prayer list hoping our Lord and Savior’s plan for you is well in the future. God bless and keep you all. Stay in touch when you have the time and strength to type.
Thanks for the summary, Martha. It is easy for the sequence of things to get muddled. Seeing the major events pulled together in the summary really emphasizes the many trials you have endured. You are amazing!!
When we get our crew healthy, we will travel north for a visit. We really miss you all. I know you must be disappointed about Scott’s hearing — and he must be frustrated by that limitation. Hang in there and know so many people are pulling for you.
Try turning on the english subtitles on the bottom of the TV (yes, Scott, that would require you to “watch” the TV which I knew you don’t like to do). A friend suggested “Harriscommunication.com”‘ for a low priced varity of hearing assistive devices.
Just wanted to let you know that I pop in now and again to see how all of you are faring. Dave also gives me updates. You’re in my thoughts and prayers.
We still have the DS game, so whenever you’re up for it, let us know and we’ll organize an exchange. Food and laughter might have to be involved.
Hello! Visits with Scott, Martha and the girls are fun and uplifting! Just ask Steve and me as we had a delightful evening with them Tuesday. Scott’s Dad reverts to CRAZY in his writing notes to Scott, but the great thing is, Scott is patient and loving and smiles beautifully as a true host would!! Thank you, Scott. …and Martha, Shannon and Erin. We liked visiting and catching up, and to see Scott out of the hospital is H U G E !!!! and uplifting!!! The book you passed along I started and am enjoying and want to buy for Craig, the outdoorsman. and maybe others as I read along. THANKS! Bryson’s other books equally interesting - library maybe. Red Robin was fun and that Erin can do homework there speaks to her superior powers of concentration. because of her superior parents…. Blessings and our prayers always and LOVE. Ann Martha, thanks for the help to the aged and un-computerized.
Martha,
Thanks for that very clear summary. It gets confusing because there have been so many ins , outs, hospita/home and so many procedures that I get confused (something that happens more and more easily these days). Did you know that Aysha flew by herself to Kenya, Leaving in your Valentine Day storm- with a missed connection in Zurich and unscheduled flight to London. She got home yesterday not a bit worried by any of it. She leaves that to us. I know I grew even more gray headed over it just as I’m sure you are getting a few gray hairs over Scott–Well at least YOU have hair.. You are both constntly in my thoughts and daily in my prayers. My eyes are crossed, my toes are crossed and my fingers are crossed that Scott gets a new liver soon. God Bless you all!
Katie the outlaw
Thanks for the update. I am grewing gray hair also worring about you four (ok, ok, maybe there are other reasons I am going gray). But I do think and worry about you everyday. Maybe we need new thinking. Instead of everyday being a wait-for-new-liver-day, think of today as a really special day with an excuse to spend time at home with your family. A day paid for with Marcus’ liver. Delibertly spend some fquality time together, delibertly force yourself to spend some time on a hobby, read to the girls, etc. It may help the depression, too. Mary
we love you. the hearing loss sucks major donkey rear end…or…maybe chicken butt depending on which of your children you are talking to…but, you two have made it through so much, i know you’ll find a way to deal with it. we love you we love you we love you - and Martha you rock so much…I’m so in awe of you, and everything you’re doing. (you’re cool too scot). *hugs* from the clay family….
What a busy couple of days! Visits, naps, and work (really!) have had my days very full indeed. We had great visits with both of my parents, and then Thursday with Ceit and Jill (never mind the eternal Walmart run that grew even beyond the ineptness of the Walmartians). The visits were fun, and I found a new cool restaurant where you can write on the tables - bring your own dry-erase markers, though.
Claire, that link looks quite interesting. The “silver bullet” antibiotic that I’m taking is indeed in the family of drugs described, so this information will hopefully be applicable. If so, I should have been taking aspirin all along, but maybe it could help to preserve what’s left of my hearing. As it happens, I have an appointment with my doctor on Friday morning, and I have printed out the article for him. Let’s hope it helps!
With that I’m going to go back to bed and hope that THIS time I can get some sleep (it’s almost 3AM). I hate insomnia, but I do get alot of reading done. Unfortunately, I haven’t tackled my home e-mail account since September - maybe that’s what I should read to get to sleep…
I just got this blog site address from Erin the other day and I am oh-so impressed. You need to congratulate yourself. Erin keeps me up-to-date with Scott’s progress. She is a remarkable girl who has kept up her spirits and her amazing work ethic through this trying school year. You can congratulate her too. Of course, the apple doesn’t fall far from the tree (as they say), so it is a tribute to you both, Mr. and Mrs. Hull, that she is handling this so well. Now that I can check this blog I’ll stay up on things. I send you my best wishes.
wow, six months. i know it’s been hard for you guys, but hang in there!
hope all goes better in the next six months, and the six after that, and the six after that….
Jenny
Well you are still at home. That’s good news. Six months and all that you two have been thru. Hang in There.
Martha, thanks for the wedding pictures. You two looked so nice and in love. Look how much that love has grown over the years. Two beautiful girls, a husband that loves you to death, a wife that cares for her man and stands behind him all the way. A wonderful married life. Even though at times you wonder. Be patient there is a lot more good times ahead of you both.
Everyone here at GSFC said hi and our prays for all continue.
Aspirin is the miracle drug. One a day helps solve a lot of problems. But, how come a doctor won’t tell you this.
God Bless and keep up the good work and try to get some rest and sleep.
Richard has been doing a massive history project on Rachel Carson’s “Silent Spring”. It made me think of Scott this year. Is it time for sign language class for all four of you? Even if only the basics (homework, dinner, emergency, etc.)
Wow, more than two weeks with no hospital stay! (knock on wood) Let’s keep it that way until the new liver becomes available.
That was REALLY nice and thoughtful of the teachers to do that for the girls.
I really miss seeing you four, hope to get together soon (but NOT for another crisis). Anybody what to come to Pittsburgh for fish sandwiches?
Scott you will appriciate this: I got volunteered to help judge the regional science fair. Should be fun. 2 weeks ago I and Joey admistrated and judged a chess tournament (I don’t even play chess, but Joey does).
Mary & the boys
A couple responses:
Claire: We asked the liver doctor about the aspirin treatment, and he wasn’t encouraging it in my case for several reasons: 1) the treatment described in the article began along with the beginning of the antibiotic, 2) he was unwilling to advise a patient based on only one unsupported article, and 3) though the aspirin doseage wasn’t given in the article summary, it would probably conflict with the stomach acid reducers I need to prevent erroding through my esophagus. I was finally able to get the full text (thank you NEJM), and the doseage of aspirin was 3 grams per day - that’s just over 9 regular strength aspirin pills!! Thanks for thinking of me and pointing out this article, but I think I have to agree with the doctor this time. We’re also going to give the full text to the Infectious Diseases doctor, so maybe we can help the next guy she has to give this antibiotic to.
Ms. Monck: The girls love all the gifts from the basket. They were so surprised to receive them. From their point of view, they’re just going along and dealing with it, but I think they are incredibly well-adjusted considering all that is happening (must have come from Martha’s genes). Please thank all the teachers for us (while we arm-wrestle the girls into writing thank-you notes).
Mary: We were directed to several excellent sign language web-sites, and spent some time this weekend learning a few very basic signs. I think I’m going to hold off on formal classes until 1) we confirm that the hearing aids aren’t going to fix the problem, and 2) school is out (the girls are busy enough already).
“Chia-Pet”? Does this mean there is fuzz now? Or did you forget the fertilizer & seeds? (maybe the girls need to take you out and water you. Remember, Shannon, a good soaking)
SCOTT WROTE
“The strange thing is trying to type on a keyboard when one of the three fingers you use for typing is numb, but hurts if you press too hard. If I miss a letter on the left side of the keybord once in a while, ut me a brek.”
Clearly the operation to remove your sense of humor was a miserable failure.
SCOTT ALSO WROTE
“My status is about the same as usual: dizzy, deaf, and no depth-perception. Sensitivity to light, garlic makes me queasy, and my reflection is getting progressively harder to see in the mirror. I’m also redeveloping a taste for blood…”
Um, Scott? Instead of a doctor, you might want to see an Exorcist or a Whatever-It-Was-That-Buffy-Called-Herself. Did they perchance give you a transfusion of blood from Eastern Europe? Maybe from someplace like Carpathia? Just asking…
Hey guys Thank you so muck for this sight It is great Scott I hope things get better for you we are still waiting for our cruise Anyway if you need anything please let us know. Things are crazy around here right now but we are going to try to get over there to see you guys and maybe Martha while the guys are together you and I can get out for a bite to eat or something You both are in our prayers ever night and you have to keep up the good work and just fight hard. Cause remember you are now a honorable Army Ranger and they never quit So keep up the happy thoughts and keep on going IT WILL GET BETTER you just have to keep on beliving in all of this happended for a reason We love you very much!
Take care,
Kim
You are going to have to force the doctors and nurses to write everything down, too (or use their laptops). For your evening phone call, you let it go to the answering machine. Time your machine from dialing to beep; he will have to wait about that time and talk to the machine. Another choice ask an assistant to listen to the phone and when Martha is listen or the machine beeps, hand him the phone for his report.
hey guys! just wanted to say that i was with kerry and tracy this weekend and both say to say hi and they’re thinking about you and sending their good wishes!
also, texting is very easy! i use it to talk to people overseas on the cheap all the time. once you get the hang of it, it’s very simple.
take care,
jenny
Another bit of free advice. If you aren’t already, get a tape recorder/digital voice recorder, and get in the habit of turning it on to record whenever a doctor/nurse/specialist walks in. It won’t help Scott too much right now, but it will help Martha from missing something as she tries to listen to the doc and write down everything. It gives you the opportunity to actually listen to the doc now, then write things down later. Or if Scott is alone when the docs come, the session is recorded so Martha can listen later.
Stay strong, and Scott, we’ll see if we can arrange some green Ensure for you for St Patrick’s Day.
Sorry to hear that you are back in the hospital. We all here were sorry to hear about your hearing problems. One thing out does the other. You need the medicine but it causes so many other problems.
We are continuing to pray for a healthier Scott.
Wish we could do more for you. Just hang in there both of you. Something has to improve soon.
Chuck reports that Scott was looking strong and doing well — and he verified this hearing loss thing. If my digital voice recorder would be of any help, you are welcome to borrow it. No tapes needed and it downloads onto the computer. Let me know. Keep up hope for the implants. Chuck’s uncle had that surgery and improved his hearing by 90%. He was basically deaf and now can hear without aids. Amazing.
Glad you’re home again, Scott, IV and all! I hope the tune up did what it was supposed to. You are amazing.
By the way, I think my dissertation defense will be in late April — probably the 25th. I guess I better finish the thing now…
Much love to the whole family.
I got your message about IM, Martha, but I’m afraid I don’t know anything about it. We do use text messaging on our cell phones absolutely all the time. It’s so convenient - especially for situations where you can’t talk. The only downside is that they charge you per message, but we upgraded our plans to include more. I tend to keep my phone on vibrate most of the time. I’ve been in situations where I couldn’t here a phone ring, but I’ve never had my phone buzz and not felt it.
Hey Martha I am sorry to hear about Scott’s hearing but I have used the relay system when I was at work and it really dose work All Scott would have to do is dial in to them with his computer and then they would call the person for him and then talk for him and type back to him. It is a great way to talk to people that can’t hear. I would really look into it There is a 1-800 number that you call to call him and I think he just calls that same number with his computer I am sure you can look up info on the computer I think it is called MD relay. Hope you guys are ok and maybe if you are home next sat on the 24th maybe will will try to find a sitter and come down or if the girls are going to be home then we will just bring the kids with us Let us know and if it works with you guys we will make it happen Talk to you soon We love you guys and as always you are in our prayers!
Love,
Kim
Life is so much fun. Seems like more problems though then fun. Welcome home again Scott.
Again, I wish I didn’t have to deal with the problems on my own home front (believe me I am not far behind your). Being a nurse requires a lot many learnings. Signs is one of them. It’s not hard but please be patient as you learn. I have a friend who is deaf. She now lives in New York. I communicate with her all the time using MD relay service. So easy and so fast to use. Your talk as you would and the typist on the other end communicates it to the receiver. They type back and the typist speaks it out to you. It is a life saver. Try it you will love it.
Well hope the girls are fine and Martha getting alittle rest. We need some more pictures from home now. Spirits need to be lefted. Let’s see the old boy busy at home doing his work with a big smile on his face. By the way……………has your hair grown any?
Okay that’s all for now got a lot of mailing here to do. I will continue to pray along with many many others. Be good, rest, be patient and most of all share your love that is so deep within you. God bless.
I use IM all the time….especially here at work…it’s awesome and really fast. if you have *any* questions at all…please feel free to call me and ask. here’s my cell: seven oh three four o eight four eight eight four.
I also used tty — i had people call me and i called people using it…it was nice when i worked at a specialist’s office.
also: Morgan of prechain knows sign langugage and may be able to point you in the right direction, should you need it.
also: more helpful projectiles from the peanut gallery….would a laptop or something help? maybe with an external keyboard so you could type on it? I may have an old one lying around the office here that would be crap for much else, but could definitely handle the typing thing…just a thought.
I”m thinking warm, wonderful thoughts for the two of you this spring…and i hope that something beautiful and wonderful and positive is growing in store for you both.
I remember my Grandpa having a light that flashed when the phone rang. With that and call id, you could get in touch with anyone who phoned through TTY. There are lots of other neat assistive devices available online at places like http://www.deafresources.com/shoppages/assistiveindex.shtml
They have flashing lights or vibrating things for fire alarms, doorbells or knocking, telephones, and alarm clocks.
It’s been a while. Quite a long while. Forgive me(?) I have lots of excuses… none of them good enough. Oh well.
How the hell are you? You’ve crossed my mind a few times in the past couple weeks so I thought I’d send you a note. I hope you’re getting better and I wish you all the best.
My Dear Scott and Martha,
I was getting out of the car this past weekend and asked Lance if he had seen you all or the girls around and he said “no”…and I thought, “why?” Then today Rich Williams sent around a synopsis of what’s been going on and reminded me of the website which I was grateful for. I have a friend who used to be an interpreter in sign language and I will ask if she can assist. I will check and get back to you. I know a little bit of sign and would be happy to give some basics and get you started……although I am rusty, will be back in town next week…if you want to chat…melanie.ott@nasa.gov, or melanie.ott@bezant.net.
talk to you soon, Mel
Alas, no books received from Scott during last evening’s visit by Ann and Steve. But, better, Scott looks great and gets around as if NOTHING WAS going on inside but the normal. And since he was tapped yesterday, he does feel better. And a visit from his Dad always is a pick-me-upper for Dad and Scott!!!!!!! Was great sharing and talking with Martha and Shannon and Erin (and their neighbors and speaking Spanish to some degree). An upside of “this liver thing” is we have more visits and pleasant times together! Praise God for all and for that new liver to come! Love,Ann
Sounds like you had a very full week end. Much more than I expected you to do. But then you only turn 43 once. now we are looking forward to celebrating 44. I hope your day was a happy as your update sounded. Sure beats sitting around the house. And God blessed you with a beautiful day to get out.
I too am a little concerned about the antibotic stop. But at the same time I hate what it is doing and will continue to do to your organs, not the musical ones. Maybe they will be able to cut it backl a little to stay pace with the infection and slow the damage. You lookmuch better with the little hair you have grown we don’t want to lose any of it. Love Dad
I just saw the picture of the girls in their pirate clothes, but I want to know who that good looking man was with them. All jokes aside, you looked pretty good there Scott. I would love to see some pictures of all of you from this past weekend in St. Mary’s. Weather was great, got you out and breathing the air out of a hospital and gave you lots of time with your lovely family. There will be many many many more days ahead of you to do things as a family.
Hang in there. We all Love you and pray for you all the time.
Send an e-mail once in while ckrueger@pop600.gsfc.nasa.gov or did you forget.
I am still working on the leave donor program for you. Hope a little helps you out.
Glad to see others from GSFC are e-mailing you. Go Goddard - Keep in touch with our Brother.
I am so sorry for not wishing you a Happy 43rd Birthday. I see you had a lot of fun on your birthday. Enjoy everyday to it’s fullest. I owe you a Birthday cake when you are able to eat and enjoy it. St. Mary’s is a great place to visit and have fun. So much to see and do. Just need the time.
Martha, we love the pictures that you are able to send to us.
We really appreciate them. Keep them coming.
Enjoy yourself and have many many more wonderful Birthdays.
Scott, Glad to hear about all the great birthday celebration! Sorry I didn’t call! I’ll catch up with you soon! It’s nice to know you’re still older than me! ha!
Spring is in full swing here in the Carolinas! 86 today! Enough pollen to color the world yellow! Gotta love it!
When you mentioned Baba saying “…she wanted to see how it all turns out” I could see her saying it while grinning and giggling! haha.
We all wish you another great day! Love! Chris & the gang!
Ok so now the old man has to learn the text thingey. I’ll get Adam to tery to teach me. After a year he got me to answer my phone messages. So probably by the time I get this scott will have a new liver. But I will give it a try. I guess this will mean that we need to get internet at home. Does that work with rotery dial ?
love you Dad.
Happy Belated Birthday! I had not realized when it was.
Something you might also want to look into is if you can use the internet to send text messages to the phone. It might help if one of you is out and one of you is at work or something.
If you haven’t found someone to teach you sign language yet, you might consider checking out the local high schools. Northwood is teaching ASL, and others might, too. Let us know if it would be helpful to ask the NHS ASL teacher for reccomendations on private lessons for your family.
Hello. I had a liver transplant at JHU Labor Day weekend, 1995, after battling PSC for 8 years. A few years ago, I was diagnosed with a re-occurrence of PSC, and have been dreading having to go through all this again. Reading your story and hearing how things have been going with you and your family has caused all sorts of emotions to run through me (and no, I am not going to try to write them all down here at one sitting!).
Stay strong and know there are people that you don’t even know who are checking up on this page and are sending prayers your way.
Well, things aren’t much better at my house. Husband as developed a lot of problem. Not going into it though.
I am glad though the fever is gone for you. Glad you were home with your family for Easter. That was a great Basket full of love and joy. Didn’t need the candy and eggs.
Time is short so I just wanted to send my best and my love to you. Of course, the prays continue to flow. Keep that fever away and out of the hospital til the big day comes.
It’s really nice to have you type an update once in a while. Gives Martha a rest.
When you are at work give me a call at 6X8811. I am in building 21 just across from you and I will buss over to see you man. I know your hearing is off but you can e-mail me or talk. My e-mail address is ckrueger@pop600.gsfc.nasa.gov
Hope to hear from you soon. Take care and don’t push yourselve to much.
Carol
P.S. I am going to Hawaii in May with my group over here for the AAS Conference and I will be doing an Outreach with my guest Astronaut. Wish you were going. A Tropical Island would be nice for you right now.
Hadn’t heard from Jody in a while so thought I check up on you this way. Glad to hear things are good with you. We think of you often and what little troopers the girls are. Love to you all. Sue and Steve
You’re right, has been pretty quiet here lately (HOORAY!!!).
Its important for you to remember (that’as the big you - ALL of you) that even though things are quiet here on the messages board, Scott, you are all still very much in our thoughts and prayers.
Hey Scott, it’s your fellow NASA engineer again. My last week or so has not been all that rosy, as the abdominal pain that they were hoping was from Fosamax sure doesn’t seem to be cooperating. Pretty sure it is just good ole PSC pain. Had hoped I’d go a few more years before getting to this point again.
Anyway, it is great to read that things are somewhat stable for you and your family right now. Guess, as I read what your wife write in the updates, silence is good when you know that when “the call” comes, it is going to be incredibly hectic.
I was very excited to read that you are going to be at the Apr. 24 event at JH.!! I am going to *try* really really hard to make it. Both my wife and I would love to meet you and your family, as we have tossed the idea of a living donor around (for my impending need of a second xplant) for a while before your website was brought to my attention. Unfortunately, I can’t guarantee my presence due to circumstances out of my control (I think you can relate to that one!)
So anyway, sitting here at my satellite engineering desk, I wanted to drop in and say hi to my comrade (in multiple ways)… even though we have never met. Believe me that my thoughts and prayers are with you. Rom 8:28 (that verse may be overused at times, but I believe that in situations like ours, it takes on a meaning of its own).
Feel free to email me sometime if you need to vent or whatever. I can empathize a lot with your struggles. (I had to put in my email address to insert this comment, though I do not know if you see the addresses as the admin of the website. Let me know!)
Just wanted you to know we are all thinking about you — and look forward to seeing you and visiting a bit this weekend. We really miss you guys. Good news about the insurance. This must be a crazy time as you crave and enjoy a more normal life yet know the call is a lifeline and signals a return to chaos.
Happy Birthday, Erin — a day early.
Jeannie and family
Happy double digits, Erin!! Sorry, we are late in our birthday wishes. Happy 10!! I am glad things are at least stable. Stable is good. Enjoy the good weather. Richard is having a female visitor today. I am so not ready for this.
Please “baa” at some sheep, alpacas and angora rabbits (think “French Fry”, Joey’s rabbit) for me. I would love to go there with you. That sounds like so much fun. Relax knowing you have a cell phone (before you had to stay next to your phone and wait). Maybe this will inspire you to get back into weaving and playing with yarn. I am jealous.
Glad to hear you are back to work some. Are you still in Bldg 6. I am in Bldg 21 now. Let’s get together sometime.
Glad to hear Martha got to go to the Sheep & Wool show. That’s a pretty important event. Being a knitter and crocheter, weave myself.
Did you get out today May 8th to see the Queen? Dressed in her bright yellow. I was so far back I really didn’t get to see to much so I came back to the office to finish my work.
Scott, How is Marcus doing these days. Good we hope.
Okay continue to hang in there. Hope a new liver arrives soon. God Bless and call me when you are at work.
Hey Scott, I’m finally getting in here to post. Hang in there buddy! I see that your efforts on the end of mission planning work are in the new NPR ( or NASA-STD, I forget which) so it looks like I’ll be doing another one on my new project! I’m looking forward to working with you on it. Take care.
Shannon, do bruises and bad road rash count as “Chickenbutt”? bummer about your accident. (note: be careful about “multitasking”, practicing your flips while riding a bike is not a good idea). Hope you feel better soon. Did the bike survive? Since you’re not going to miss any schoolwork, it’s a pity you can’t come see us…
Shannon, Martha, aren’t you paying for a cell phone for Shannon? She is a teenager. Most teenager are never without their phone except in the shower…. (usually, attached to their ear or thumb)
Martha, could you send me the girls’ email addresses?
No more trips to the ER! My heart jumped when I read that news. Shannon…. we need to talk. Thanks for the kind words, Martha. My graduation was yesterday so now it really feels like I have the PhD. I wore my dad’s robe — so he was with me in spirit. Kathleen has started calling me Queen Dr. Mommy. I don’t think it will last, but I’m enjoying it now!
I continue to be amazed by your stamina, Scott. Enjoy these beautiful spring days and your wonderful family.
Scott, Martha-
How very good that news is. Both John and I are really pleased to hear it. We are off to England on Tuesday and so we won’t be able to keep track for a month but you will still be in our thoughts and prayers,(with thanksgiving!). I hope you have a good weekend and all continues on track.
Love,
Katie
Sounds like you are doing better then the last time I was on here reading about your status.
I have been doing a lot of traveling for NASA. Just got back from AAS Conference in Honolulu, Hawaii. It was great. Hawaii is too much commerical though. Like walking the boardwalk at OC.
Keep up the good work. My prayers remain with you Scott.
Enjoy the Summer.
Dear Scott and Martha,
The miracle is taking longer than we expected but your latest news is heartening In FL we are praying for full restoration of all your faculties free of any pain. Martha, the woolie show sounds fascinating. I’m glad you were able to go.
Your kids are being normal kids and Dad is burying cable! Wonderful stuff of which life is made. God loves you all. (Ann’s sister in FL) Alice
IT is wonderful to read about such GREAT PROGRESS towards good health and recovery. we send continued prayers and intentions for more of the same…Scott! STAY OUT OF THE RIVER! just because you no longer have the picc line does NOT mean it is ok to be in that water.. give your recovering immune system a boost by not exposing it to more ilchy stuff…
My family was honored to be present at a very special wedding 17 years ago that took place in a magickal glen that seems to have been created just for the occassion… After a wonderful ceremony, we went to mom’s house for a kewl reception .. I remember those HUGE strawberries and the chocholate! Yummy! It was great to share that special day with you and so wonderful to celebrate this year.. we look forward to many more years of “normal”..
take care,
nancyB and the rest of the Barry family
Happy Anniversary, Scott & Martha! Do I need to don pink hiking boots, a pink dress and a pink baseball cap in honor of the weekend? (I would prefer dark chocolate covered strawberries…
Happy Birthday, Shannon! Sorry we are going to miss it. The boys are done with school as of noon Friday (Richard has 20 minutes this Tuesday). However, we can’t come because of 4-H stuff and Grandma’s knee surgery the following week (some of us are coming then). Did you know Joey is going to Montana next week?
Happy Anniversary! Reading through your blog from the last month, and hearing about the summer weather, brought so many fond memories back for me. It’s really hard to believe that I’ve been away from Maryland for nearly three seasons. London is warm too, its always an exciting city in the summer.
The updates over the last weeks are very encouraging; Scott I’ll keep in touch by text message. Hi to all the Hull family, I hope you all have a great summer.
Scott, Martha, glad you had a good weekend. Scott, maybe you should kayak to work.
Shannon, HAPPY 14th! two years until driving Daddy’s car! Now is time to drive Daddy crazy with cell phones, makeup and BOYS (even it they don’t interest you, it’s entertaining to fluster Daddies). Work hard and do your chores. I will see you and Erin next week. Aunt Mary
It is good that you had such a GREAT weekend! a nice way to CELEBRATE so many things!
SCOTT: you are a WALKING, MIRACLE and not that other very negative thougt! You are ALIVE, the infection seems to be behaving and disappearing? ,the open wound is healed, the PICC line is OUT, you are working, you are able to work on projects with your daughters, you are able to leave the house and stay for a while at a place I know that you love.. SEEMS to me that HEALING and RECOVERY are occurring… think on the positives so that they blossom and block out any negatives that might think of returning…
hey guys! i was off on the appalachian trail for a few weeks, so just now catching up…glad to hear there’s some good news, and that scott is getting stronger!
and hearing about the cabin makes me remember great times with you all.
take care, and scott stay well!
Jenny
Mary, teh time stamps have always been off by several hours. I thought it was stamped in GMT, but that should only be off by 4 hours (5 in the winter). Nine hours is odd, but then what about me ISN’T odd?
And look for an update very soon. We had little to say, so we didn’t say it. Maybe if things continue to go well it will be time to close up this shop at the one year mark. Any comments?
Sorry that I haven’t been here in a while and I have missed a lot. At the risk of sounding like a religious fanatic, I’ll write this anyway.
I once told you that I was a Nichiren Buddhist who chants Nam-myoho-renge-kyo and you said that you were more into the Celtic stuff.
The most important thing in religion is does it answer your prayers. Nam-myoho-renge-kyo means Devotion to the Mystic Law of Cause and Effect and it’s Teachings or Sound. But it means more than that. Go to http://www.sgi-usa.org for more info.
What’s important is getting actual proof - that things that you chant/pray about actually occur. I would strongly encourage you to try to say Nam-myoho-renge-kyo.
Nam as in Viet Nam
Myoho as in me-yoh-ho
Renge as in wren-gay
Kyo as in key-oh
Our bodies, which get sick, can also cure itself. It’s about manifesting one’s Buddha-nature (which we all possess). This gets us in rhythm with everything else.
Try to chant as much as possible about becoming healthy again so that you can show others how great chanting Nam-myoho-renge-kyo really is!
To reiterate what was writen by Arlette et al, it is wonderful to see the current notes to be about everyday life and family. It is a relief to see that your condition seems to be stable enough to be planning for Pennsic. Hope to see you both at the war this year.
I just wanted to assure everyone, that although we are not updating the website very often (there has not been much to tell!), we are reading, and enjoying your comments! Thank you everyone for sending them!
I am so sorry to hear about the joint issue. I hope it sounds worse than it is, because it sounds bad. Fill us in on Friday.
I am happy to hear younz (you plural in Pittsburghese) are enjoying your Harry Potter. Younz need a good distraction. I hear even Erin has been reading. How long and when are younz doing the Pensic thing?
Hey guys- just checked in. Sorry to hear about the hip/joint issue. That sucks ass! I can’t imagine what it’s like for youse guys living through it, cause it’s overwhelming for me just reading about it occasionally.
I’m trying to focus on the good parts & really, really looking forward to seeing the whole family at Pennsic! Hope we can have you as long as possible.
Rest up for War everyone & remember: we all look best in plaid!
Blessings for all of your journeys
~Va/amber
I hope you make it to Pennsic — that is good medicine for you all. We miss you and hope to welcome you to Alexandria soon. We are still unpacking boxes and trying to get organized. Kathleen had a great time in Corning, NY with her grandmother at the Elderhostel. We’ll tune in to the webcast at 9 tonight.
Much love,
Jeannie and family
As you know, Alec has a similar disease, but in a childhood form, with Legg Perthes. He had the surgery where holes were drilled into the bone to allow air and blood to circulate and try to help the bone grown. They drilled two holes into his hip, during his surgery to place an exfixator into the bones (which helped to lengthen the bone and also helped to get the bones to grow). The holes really did help the bone grow, and four months after the surgery, the xrays clearly showed new growth. 3 years later, we are down to yearly appointments, instead of monthly, and his bones appear to be on an appropriate path. Like Scott, he may have arthritis in his hips when he is older, and he may need hip replacements, but the other thing his doctors told him was to religiously do daily exercises, and that that would help keep blood flowing and hopefully prevent the need for hip replacements. Scott’s case is obviously different, but potentially, such exercises (stretching, mostly) will help. We used the Rubin Institute at Sinai hospital in Baltimore, with Dr. Paley and Dr. Standard. Paley is the world expert in Alec’s rare disease, and the Rubin Institute is the foremost hospital for such bone issues, with people coming from around the world (and believe me, we see and hear them in the waiting room!!!). Paley is also associated with Hopkins, so if you need someone truly good, I would recommend these doctors. You have our best wishes and you know you can contact us with questions!
Scott,
Hey there bud! Glad to hear Pennsic was such a good time. It sounds like there was more healing of the soul than anything else. A great place to recharge those batteries! I was sorry to read of the nagging pains that seem to continue to return. Hopefully the PT will offer some sort of relief. Pass along hugs & kisses to Martha & the girls and continue to hang in there. One day at a time….
Hi all,
It was great to see and chat with you at Pennsic - Shannon looks so grown-up now! We are all amazed at your fabulous lip-reading abilities (leave it to Gallen to learn something faster than anyone would expect). Kaylah almost didn’t believe that you couldn’t hear her! We were very lucky that Thorgrim was able to make it down on the last Friday, and was looking pretty good. My fingers are crossed for a longer trip to Pennsic for both of you next year. I really hope that the next round of surgeries goes well, and that the physio can get the blood flowing without causing you too much extra pain. I am tremendously impressed by your ability to stay positive when everything hurts - I know it can really start to drag on you after a while. It was wonderful to see you.
Love,
Arlette
hey guys, glad to hear pennsic was fun, for even the short time you could be there.
i am heading out to the DC area, so hope to see you all sometime soon in the coming weeks!
jennifer
Thanks for the updates in your voice, Scott. The first person narrative is a powerful way to communicate. That doesn’t mean we don’t appreciate Martha’s efforts because we do!! It’s also fun to have the girls write sometimes.
We really miss you all and are surprised to be at the halfway point in August. Please know we are thinking about you and pulling for you. We will be in touch about a visit.
Much love, Jeannie, Chuck, Evan, Kathleen and Bella
I just noticed this submission page had the wrong email for me. Be sure to use my gmail account as the umd.edu account is no longer available to me.
Cheers,
Jeannie
Lost email contact from dahlraidia back in October & my efforts to change my subscribed email have failed. Doesn’t mean I haven’t thought of you. I do, and keep you in my prayers. Seems that they haven’t been working. Will redouble my efforts. Baby Anika is 1 yr 2 months — face looks like a battering ram between tumbles & fingernails I can’t keep cut short enough. Sweet girl, into everything. Love to you & family - Nin/Cat
Scott, Glad you were able to make it to Pensic. And that it was as therapeutic as it sounds, mentally, emotionally, and (okay maybe not so much) physically. Did Shannon sneak a dive in the lake to look for leeches? Its gotta be great visibility in there - you figure 6 - 9 inches?
Stay positive (you seem to have a knack for that, even thru the pain and frustration), and get out and enjoy this nice break in the weather we’re having.
-Cea
Hi guys! Sounds like a fun weekend!
Here is a comic for Shannon before she heads back to school. It doesn’t make much sense to me, but I’m sure she will get it - http://www.wondermark.com/d/037.html
Does Richard’s 10 seconds count on a single ski count? Richard is still pretty sore from tubing and skiing. He also twisted his knee badly. Thank goodness he is not playing soccer this year. He started 10th grade today. Hopefully, Shannon will be able to work on her homework more indepentently this year.
It was good to see you all at Pennsic, no matter how briefly.
In answer to your question, Scott: the Irish for “child” is páiste (pronounced like paws-chuh), and the plural is páistí / na páistí; (that’s “children” and “the children”–pronounced nah paws-chee).
Heal those hips, friend. And you wonderful Hulls keep taking care of each other. I’ll go kick the BBC.
I tried to send them an e-mail requesting the date, but all I got back was an automated reply saying to check their schedule. I will try again, with some other ideas.
HAPPY reBIRTHDAY! what an incredible miracle today is for all of you! I am sure there were many days when you questioned what has happened this year that has not turned out as expected. YOU ARE ALIVE! ..We are given challenges for a reason and it often takes a long time to see through the weeds and learn the lessons… keep up the physical activity ; STAY OUT OF THE RIVER! .. “every step is a step of healing; one foot at a time”
glad to see your sense of humor is running amuck again…
Happy LIVErBirthday Scott!
(no…I’m over here…look farther to your left…there!)
So…naked goats AND wild hogs, eh? Whachubinsippinson? Oh yeah, those perscripchun coctails.
Really though, glad to hear that you were up for all that work. Congratulations on projects done! And happy that the eye seems to be on the mend EMBRACE YOUR INNER NERD! Goggles are cool - just ask the Mythbuster crew.
Hey there brother!
Glad to hear no major injuries due to you home improvement projects. So, good luck on the procedure tomorrow. I hope you will not be in the hospital too long. I have my hernia surgery next month (Oct 3rd) at Hopkins, so once we are both feeling better maybe we’ll be able to link up somewhere. If not in November then DEFINATLEY for Christmas! Everyone says hi and pass along hugs to Martha & the girls for us.
Take care!
Marcus
Happy New Liver Day! Hope your new surgery goes really well.
I have a thought; hum. All the extreme problems and complications Scott has had in the last year, from the infections, to the hip thing, to the hearing loss, to the eye damage while weeding: Is he cursed or really, really lucky?
dear scott, martha and the rest of the hull family,
so great to hear how you are doing! i know its still up and down and a tough year, but you’ve all coped so well. hard to believe thats its over a year since we met. have you had a chance to see the film yet? i thought it was very good all round. how are the girls doing? back to school now?
im working on the uk version of the apprentice now, enjoying london but missing the u.s. sometimes! do write back soon,
Martha, Scott, and Loved Ones — I’m so glad to know the surgery went well.
I wasn’t sure of the exact date, so I’ve been praying all week! Take Care!
Dorothy
I continue to be amazed at how you all manage the regular demands of life (going back to school, buying groceries, cooking, etc.) and the extra demands that have come your way. Poison Ivy? That’s just not fair!! We really miss you all but seem to be consumed with life’s regular demands to make it up to Columbia. Please know you are in our hearts and thoughts and we WILL figure out a way to connect soon.
Be well,
Jeannie, Chuck, Evan, Kathleen, and Bella
Carol A. Krueger said,
February 14, 2007 at 3:47 am
My Dear Sweet Scott,
How much more can you take. I have been away on Government travel to Galveston, TX. Tried to check the status as much as I could. One day this and the next day that. You are a strong man. You will beat this.
Our prayers continue to flow in for you. You are on everyone’s prayer list in every church around. The Lord is with you and with his help, you thru pull thru.
Doctor wants you to walk and get strong. Grab Martha and take her for a stroll. Tell her you love her and how much you appreciate her being there with you. This keeps your mind thinking while you walk and strength will follow.
Wish I could do something or even give my liver up to you. But, I can continue from this end for leave donors and prayers.
Hang in there man and remember we love you and pray everyday for your health.
Carol
Aunt Mary said,
February 14, 2007 at 11:28 am
Scott & Martha, you have been put on the transplant list, hayra! When is the Par-ta? Happy V-day! Mary
Emily Litella said,
February 14, 2007 at 1:33 pm
WELD score? Why would anyone be interested in Scott’s WELD score? They don’t weld the transplant in. And even if they did, Scott wouldn’t be welding, the doctor would. So they should want to know the doctor’s WELD score.
Transplant welding…that’s just … What?
MELD score? Oh that’s different then. Never mind.
Isopel said,
February 14, 2007 at 4:53 pm
Yay transplant list! Okay, now that it’s T minus something again we’ll all play the waiting game. All our hopes and best wishes are with you and the whole family…
Love,
Isopel & Matho
Dave O'Bryan said,
February 14, 2007 at 8:03 pm
Another WoooHoooo!
Glad to hear about the impending transplant.
I may be able to get up there Frdiay afternoon to ‘run’ you around the floor.
Kim Hull said,
February 15, 2007 at 12:43 am
Sorry I left a comment under 1 I didn’t read Martha’s comment about leaving it here instead of comments 1 so from now on we will leave our comments here
Martha thank you sooooo much for updating this sight we check it everyday 
Kim
Joel Simpson said,
February 15, 2007 at 2:34 am
Scott,
You had a few ‘Eastern Shore folks’ here praying for you tonight. Our bible study group is wishing you the best with this latest challenge. Martha, our prayers are with you too, may you both continue in great strength!
Joel and family and friends - happy valentines day…..
scotthull said,
February 15, 2007 at 4:03 am
We continue to appreciate all the support and prayers. Please keep them coming!
This afternoon we sat with a friend from the transplant community whose husband was in the process of surgery to remove his stomach (a long-term complication of his liver transplant). It was a strong reminder for me of how much worse things could be. It also reminded me that Martha will soon sit in that same room for many stressful hours for a second time. What good things must I have done in a former life to deserve a wife like her?
Well, it’s time to go stretch my legs with a walk. Hope you all enjoyed your VD.
Scott
Jennifer Wiens said,
February 15, 2007 at 8:14 am
glad to hear things maybe aren’t so dire as earlier, and my thoughts continue with you guys.
Charles Holder said,
February 15, 2007 at 3:20 pm
Scott,
You know they got shots for that VD thing now? We had a fun one. Went to the Birchmere … to see Burlesque-a-pades .. neo-burlesque. And, surprise surprise, we saw SteelEye.
Try to keep smiling. Hey, you had your sweetheart with you for the day. That’s a real positive.
And Martha, its not the surroundings, or the food, its being in the company of your Love that is the romance.
Charles Holder said,
February 15, 2007 at 3:21 pm
Scott,
You know they got shots for that VD thing now? We had a fun one. Went to the Birchmere … to see Burlesque-a-pades .. neo-burlesque. And, surprise surprise, we saw SteelEye there (in the audience, NOT on stage).
Try to keep smiling. Hey, you had your sweetheart with you for the day. That’s a real positive.
And Martha, its not the surroundings, or the food, its being in the company of your Love that is the romance.
Dick and Darlene said,
February 15, 2007 at 7:49 pm
Hey Scott, We are away in Chile visiting with Any and Rodrigo (Chris’s AFS sister/friend). We will keep checking your web page and check in on you. Keep getting stronger. We will call you when we get home on March 1. Love to you and Martha.
D & D
Chris, (Scott's Cousin) said,
February 15, 2007 at 11:12 pm
Scott & Martha, I can’t tell you how awesome it was to visit with you guys last weekend! It boosted my spirits as well; seeing you walk with strength and laughing hard like we always have! Your hearing may be a little off, but your sense of humor is still tops! Greg and I ran to catch the metro and I almost flipped over the entry gate. ugh! Of course it was Greg’s gate, not mine, which is why I now have this bruise on my thigh and sore muscles from laughing so hard. Greg was no help, as usual. haha. Prayer and happy thoughts to both of you!
Love, Chris
Marian said,
February 16, 2007 at 1:46 am
Oh, THANK GOODNESS Scott is coming home. That must be a huge relief to you both. YEAH! The kids must be ecstatic. See! What a great Valentine’s Day present! they just must have waited for the ice to decrease a bit!
Jeannie said,
February 16, 2007 at 4:06 am
Great news!! The second hand adrenalin rush is crazy enough, I know it is even more intense for you all. Hurry up and wait is the order of the day. I don’t really understand it, but I am so happy Scott is coming home. Kathleen is recovering from strep so we’ll keep our distance for a bit until we’re sure no one else is affected. We miss you guys. Love to all,
Jeannie and family
Carol Krueger ( friend of Scott's) said,
February 16, 2007 at 4:30 pm
Hi Scott, Martha and girls,
I have really enjoyed the pictures Martha. It means so much to see Scott smiling, getting a hair cut, water skiing, lying in bed. Pictures are like progress. The ups and the downs. Okay, how come we never get to see pictures of you Martha and you and Scott together. Someone there in that JH can take a picture of the two of you together. Keep them coming sweetheart they are great.
The ice is melting and the sun is shining and hopefully Scott is coming home. Keep in touch and send pictures.
The gang at GSFC.
Mary, "the evil twin" said,
February 18, 2007 at 2:11 am
Nice to hear he’s home again. Girls, you need to help your mom. Clean your rooms. Sorry, I couldn’t come to see you four. We’re thinking and praying for you. Love, Mary and the boys.
Teresa said,
February 18, 2007 at 5:23 am
Hi Scott and Martha, everytime I call Bolivia (and that’s very often…Jesse thinks I should just go there every month…”it would be cheaper”
before i say any thing the question is, “how is the cousin?” I keep telling them to write to you directly…but they are shy…in Spanish… this is just to let you know of all the thoughts and prayers that come from South of the border and beyond… Martha, here comes one more thanks! for all this effort to keep us informed…gosh! we’re constantly checking this website, always with the hope of good, good, good news and thinking of you all.
Charles Holder said,
February 20, 2007 at 1:48 pm
Scott,
It was great to finally be healthy enough to visit you again. And what a bonus to do it AT HOME.
You are looking good, all things considered. And I hope, at some point, you can appreciate the RESTRAINT shown for not playing with the conversation volume. Hopefully the hearing will start to straighten itself out soon.
Take care friend and bask in all the positive thoughts (and warmer temps) beaming your way.
Carol Krueger ( friend of Scott's) said,
February 21, 2007 at 1:08 pm
Good morning Scott from the gang at Goddard. Glad you made it home, got the pic line fixed and the fevers are down. Hearing will improved over time. Being a nurse I have seen this happen before. But, it takes time and I mean a lot of time. So please be patient.
Martha, yes sweetheart it is hard on you trying to be the wife, nurse, mother, worker, maid and everything else. You are one of the blessed ones that can do it. You are a strong women. Of course, my children are grown. They still come to me for help. So do five grandchildren. Trying to take care of my mental case husband and all his health problems, working two jobs, running him back and forward to doctors and hospitals and keeping up with my cake business, cleaning, cooking, and a minute a day for myself. I know just what you are going through. But God made women strong to deal with all the problems and we adjust and do it. Hang in there. The rewards will be worth it.
Keep showing those signs of improvement Scott. We all love you and all the prayers are continuing for you.
Susan Olney said,
February 22, 2007 at 3:28 am
Scott and Martha:
Just wanted to let you know you are in my thoughts and prayers. I’m pulling for you to get that new liver SOON! I’m about 6 days away from the new baby being here, so unfortunately I can’t come help out. But know that I’m holding you both close in my heart.
Susan
little goat said,
February 22, 2007 at 3:37 am
This is what I see in the future……….a nice strong healthy liver that someone didn’t need anymore and gave it to Gallen because he needs it. I also see a problem- free installation;as easy as getting a new tire on a car…..is everyone with me??? Recovery time - piece of cake {not a piece of liver!},don’t blink ‘cuz Scott will have to shovel snow in no time. I LOVE LIVER!!!!If you have ever eaten liver in this lifetime - stop it! Think of what the liver does for work -don’t eat it, respect it! Honor the liver and one will show up……if I happen to bump into a liver on the street tomorrow, I’ll hug it and say “thanks!”
Mary, "the Evil Twin", from Pittsburgh said,
February 23, 2007 at 3:06 pm
Let’s pray “the long wait” won’t be too long.
Girls - CLEAN YOUR ROOMS!
Dave Vierling said,
February 26, 2007 at 1:45 pm
Scott & Martha,
Proving once again that it’s a good idea to marry a woman smarter than yourself, my lovely bride suggests that you put a second TV next to Scott’s where you can adjust the sound for YOU to hear. The “sound TV” can be a small set, like a 13 inch — you don’t even need to look at the screen.
Wouldn’t help with movies, though, but it would allow you to watch programs.
Dave
Carol Krueger ( friend of Scott's) said,
February 26, 2007 at 2:18 pm
Good morning Scott from Goddard,
No snow did not stop me from coming to work. Others though are late. Roads were cleared.
How about you? Sounds like you are up and about. Sorry about your hearing. But, most husbands would like that because they wouldn’t have to listen to their wives. ha ha All jokes aside, I do hope it gets better and soon.
Martha, we love the pictures. Keep them coming. It is so easy to read and look at a picture and to relate to it. Yes we would like to see the wedding pictures. Oh yes pictures of Scott as a baby. I bet he was a cute little boy. Probably one of those big tease boys.
Got to run. Continue to improve. God bless and the prayers will continue for you and your family.
Carol (GSFC)
Ed & Marilyn Copeland said,
February 26, 2007 at 4:23 pm
Love & blessings to you all!
Scott, we received an email copy from your Dad & Stepmom with your address on it. Didn’t know exactly what your ailment was, and can certainly understand the trials each of you are going through since doing much of the similar with our family’s Leukemic trial. Have placed your family on our church prayer list hoping our Lord and Savior’s plan for you is well in the future. God bless and keep you all. Stay in touch when you have the time and strength to type.
Jeannie said,
February 27, 2007 at 4:33 am
Thanks for the summary, Martha. It is easy for the sequence of things to get muddled. Seeing the major events pulled together in the summary really emphasizes the many trials you have endured. You are amazing!!
When we get our crew healthy, we will travel north for a visit. We really miss you all. I know you must be disappointed about Scott’s hearing — and he must be frustrated by that limitation. Hang in there and know so many people are pulling for you.
Jeannie (and family)
Mary, "the evil twin" said,
February 27, 2007 at 12:32 pm
Try turning on the english subtitles on the bottom of the TV (yes, Scott, that would require you to “watch” the TV which I knew you don’t like to do). A friend suggested “Harriscommunication.com”‘ for a low priced varity of hearing assistive devices.
Lanea said,
February 27, 2007 at 1:01 pm
Seriously, when can I trap some evil bacteria in an alleyway and kick their asses for you? Huh? Home about now?
I’m sorry about the hearing loss. No fair at all.
Lanea said,
February 27, 2007 at 1:10 pm
That was supposed to say “How about now” Typing too fast.
Amanda said,
February 27, 2007 at 4:59 pm
Just wanted to let you know that I pop in now and again to see how all of you are faring. Dave also gives me updates. You’re in my thoughts and prayers.
We still have the DS game, so whenever you’re up for it, let us know and we’ll organize an exchange. Food and laughter might have to be involved.
Ann Hull said,
February 28, 2007 at 11:19 pm
Hello! Visits with Scott, Martha and the girls are fun and uplifting! Just ask Steve and me as we had a delightful evening with them Tuesday. Scott’s Dad reverts to CRAZY in his writing notes to Scott, but the great thing is, Scott is patient and loving and smiles beautifully as a true host would!! Thank you, Scott. …and Martha, Shannon and Erin. We liked visiting and catching up, and to see Scott out of the hospital is H U G E !!!! and uplifting!!! The book you passed along I started and am enjoying and want to buy for Craig, the outdoorsman. and maybe others as I read along. THANKS! Bryson’s other books equally interesting - library maybe. Red Robin was fun and that Erin can do homework there speaks to her superior powers of concentration. because of her superior parents…. Blessings and our prayers always and LOVE. Ann Martha, thanks for the help to the aged and un-computerized.
Katie Townrow said,
March 1, 2007 at 5:18 am
Martha,
Thanks for that very clear summary. It gets confusing because there have been so many ins , outs, hospita/home and so many procedures that I get confused (something that happens more and more easily these days). Did you know that Aysha flew by herself to Kenya, Leaving in your Valentine Day storm- with a missed connection in Zurich and unscheduled flight to London. She got home yesterday not a bit worried by any of it. She leaves that to us. I know I grew even more gray headed over it just as I’m sure you are getting a few gray hairs over Scott–Well at least YOU have hair.. You are both constntly in my thoughts and daily in my prayers. My eyes are crossed, my toes are crossed and my fingers are crossed that Scott gets a new liver soon. God Bless you all!
Katie the outlaw
Claire, Sundar and Ranga said,
March 1, 2007 at 3:57 pm
Scott and Martha, we are thinking of you every day. And please check out this link on antibiotic hearing loss, if you have not already…
Claire
http://www.deafnessresearch.org.uk/Aspirin+could+prevent+antibiotic-induced+hearing+loss+3097.twl
http://www.medicalnewstoday.com/medicalnews.php?newsid=42329
Mary, "the Evil Twin", from Pittsburgh said,
March 1, 2007 at 5:11 pm
Thanks for the update. I am grewing gray hair also worring about you four (ok, ok, maybe there are other reasons I am going gray). But I do think and worry about you everyday. Maybe we need new thinking. Instead of everyday being a wait-for-new-liver-day, think of today as a really special day with an excuse to spend time at home with your family. A day paid for with Marcus’ liver. Delibertly spend some fquality time together, delibertly force yourself to spend some time on a hobby, read to the girls, etc. It may help the depression, too. Mary
Morgana said,
March 1, 2007 at 11:12 pm
Hi Martha & Scott.
we love you. the hearing loss sucks major donkey rear end…or…maybe chicken butt depending on which of your children you are talking to…but, you two have made it through so much, i know you’ll find a way to deal with it. we love you we love you we love you - and Martha you rock so much…I’m so in awe of you, and everything you’re doing. (you’re cool too scot). *hugs* from the clay family….
Scott said,
March 2, 2007 at 7:51 am
What a busy couple of days! Visits, naps, and work (really!) have had my days very full indeed. We had great visits with both of my parents, and then Thursday with Ceit and Jill (never mind the eternal Walmart run that grew even beyond the ineptness of the Walmartians). The visits were fun, and I found a new cool restaurant where you can write on the tables - bring your own dry-erase markers, though.
Claire, that link looks quite interesting. The “silver bullet” antibiotic that I’m taking is indeed in the family of drugs described, so this information will hopefully be applicable. If so, I should have been taking aspirin all along, but maybe it could help to preserve what’s left of my hearing. As it happens, I have an appointment with my doctor on Friday morning, and I have printed out the article for him. Let’s hope it helps!
With that I’m going to go back to bed and hope that THIS time I can get some sleep (it’s almost 3AM). I hate insomnia, but I do get alot of reading done. Unfortunately, I haven’t tackled my home e-mail account since September - maybe that’s what I should read to get to sleep…
Marijane Monck said,
March 6, 2007 at 3:09 am
I just got this blog site address from Erin the other day and I am oh-so impressed. You need to congratulate yourself. Erin keeps me up-to-date with Scott’s progress. She is a remarkable girl who has kept up her spirits and her amazing work ethic through this trying school year. You can congratulate her too. Of course, the apple doesn’t fall far from the tree (as they say), so it is a tribute to you both, Mr. and Mrs. Hull, that she is handling this so well. Now that I can check this blog I’ll stay up on things. I send you my best wishes.
Jennifer Wiens said,
March 6, 2007 at 4:43 am
wow, six months. i know it’s been hard for you guys, but hang in there!
hope all goes better in the next six months, and the six after that, and the six after that….
Jenny
Carol Krueger ( friend of Scott's) said,
March 8, 2007 at 12:38 pm
Hi Scott,
Well you are still at home. That’s good news. Six months and all that you two have been thru. Hang in There.
Martha, thanks for the wedding pictures. You two looked so nice and in love. Look how much that love has grown over the years. Two beautiful girls, a husband that loves you to death, a wife that cares for her man and stands behind him all the way. A wonderful married life. Even though at times you wonder. Be patient there is a lot more good times ahead of you both.
Everyone here at GSFC said hi and our prays for all continue.
Aspirin is the miracle drug. One a day helps solve a lot of problems. But, how come a doctor won’t tell you this.
God Bless and keep up the good work and try to get some rest and sleep.
Love,
Carol and the gang
Mary, "the evil twin" said,
March 11, 2007 at 6:36 pm
Richard has been doing a massive history project on Rachel Carson’s “Silent Spring”. It made me think of Scott this year. Is it time for sign language class for all four of you? Even if only the basics (homework, dinner, emergency, etc.)
Wow, more than two weeks with no hospital stay! (knock on wood) Let’s keep it that way until the new liver becomes available.
That was REALLY nice and thoughtful of the teachers to do that for the girls.
I really miss seeing you four, hope to get together soon (but NOT for another crisis). Anybody what to come to Pittsburgh for fish sandwiches?
Scott you will appriciate this: I got volunteered to help judge the regional science fair. Should be fun. 2 weeks ago I and Joey admistrated and judged a chess tournament (I don’t even play chess, but Joey does).
Mary & the boys
scotthull said,
March 12, 2007 at 4:50 am
A couple responses:
Claire: We asked the liver doctor about the aspirin treatment, and he wasn’t encouraging it in my case for several reasons: 1) the treatment described in the article began along with the beginning of the antibiotic, 2) he was unwilling to advise a patient based on only one unsupported article, and 3) though the aspirin doseage wasn’t given in the article summary, it would probably conflict with the stomach acid reducers I need to prevent erroding through my esophagus. I was finally able to get the full text (thank you NEJM), and the doseage of aspirin was 3 grams per day - that’s just over 9 regular strength aspirin pills!! Thanks for thinking of me and pointing out this article, but I think I have to agree with the doctor this time. We’re also going to give the full text to the Infectious Diseases doctor, so maybe we can help the next guy she has to give this antibiotic to.
Ms. Monck: The girls love all the gifts from the basket. They were so surprised to receive them. From their point of view, they’re just going along and dealing with it, but I think they are incredibly well-adjusted considering all that is happening (must have come from Martha’s genes). Please thank all the teachers for us (while we arm-wrestle the girls into writing thank-you notes).
Mary: We were directed to several excellent sign language web-sites, and spent some time this weekend learning a few very basic signs. I think I’m going to hold off on formal classes until 1) we confirm that the hearing aids aren’t going to fix the problem, and 2) school is out (the girls are busy enough already).
Mary, "the Evil Twin", from Pittsburgh said,
March 12, 2007 at 5:56 pm
“Chia-Pet”? Does this mean there is fuzz now? Or did you forget the fertilizer & seeds? (maybe the girls need to take you out and water you. Remember, Shannon, a good soaking)
Martha, "the clone" said,
March 12, 2007 at 9:48 pm
Yes, he is has hair! It sticks straight up and he looks like a “Chia-head”! When he is not looking I put MiracleGro on it!
Dave Vierling said,
March 13, 2007 at 1:57 pm
SCOTT WROTE
“The strange thing is trying to type on a keyboard when one of the three fingers you use for typing is numb, but hurts if you press too hard. If I miss a letter on the left side of the keybord once in a while, ut me a brek.”
Clearly the operation to remove your sense of humor was a miserable failure.
SCOTT ALSO WROTE
“My status is about the same as usual: dizzy, deaf, and no depth-perception. Sensitivity to light, garlic makes me queasy, and my reflection is getting progressively harder to see in the mirror. I’m also redeveloping a taste for blood…”
Um, Scott? Instead of a doctor, you might want to see an Exorcist or a Whatever-It-Was-That-Buffy-Called-Herself. Did they perchance give you a transfusion of blood from Eastern Europe? Maybe from someplace like Carpathia? Just asking…
Mary, "the Evil Twin", from Pittsburgh said,
March 13, 2007 at 2:03 pm
We want pictures!
Kim Hull ( Marcus's Wife) said,
March 13, 2007 at 6:28 pm
Hey guys Thank you so muck for this sight
It is great 
Scott I hope things get better for you we are still waiting for our cruise 
Anyway if you need anything please let us know. Things are crazy around here right now but we are going to try to get over there to see you guys and maybe Martha while the guys are together you and I can get out for a bite to eat or something 
You both are in our prayers ever night and you have to keep up the good work and just fight hard. Cause remember you are now a honorable Army Ranger and they never quit 
So keep up the happy thoughts and keep on going IT WILL GET BETTER you just have to keep on beliving in all of this happended for a reason 
We love you very much!
Take care,
Kim
Mary said,
March 14, 2007 at 10:15 am
You are going to have to force the doctors and nurses to write everything down, too (or use their laptops). For your evening phone call, you let it go to the answering machine. Time your machine from dialing to beep; he will have to wait about that time and talk to the machine. Another choice ask an assistant to listen to the phone and when Martha is listen or the machine beeps, hand him the phone for his report.
Jennifer Wiens said,
March 14, 2007 at 1:10 pm
hey guys! just wanted to say that i was with kerry and tracy this weekend and both say to say hi and they’re thinking about you and sending their good wishes!
also, texting is very easy! i use it to talk to people overseas on the cheap all the time. once you get the hang of it, it’s very simple.
take care,
jenny
Charles Holder said,
March 14, 2007 at 3:01 pm
Another bit of free advice. If you aren’t already, get a tape recorder/digital voice recorder, and get in the habit of turning it on to record whenever a doctor/nurse/specialist walks in. It won’t help Scott too much right now, but it will help Martha from missing something as she tries to listen to the doc and write down everything. It gives you the opportunity to actually listen to the doc now, then write things down later. Or if Scott is alone when the docs come, the session is recorded so Martha can listen later.
Stay strong, and Scott, we’ll see if we can arrange some green Ensure for you for St Patrick’s Day.
Carol A Krueger said,
March 15, 2007 at 2:06 am
Hi Scott,
Sorry to hear that you are back in the hospital. We all here were sorry to hear about your hearing problems. One thing out does the other. You need the medicine but it causes so many other problems.
We are continuing to pray for a healthier Scott.
Wish we could do more for you. Just hang in there both of you. Something has to improve soon.
We Love you man and miss you.
Carol and the gang at GSFC.
Jeannie said,
March 16, 2007 at 3:26 am
Chuck reports that Scott was looking strong and doing well — and he verified this hearing loss thing. If my digital voice recorder would be of any help, you are welcome to borrow it. No tapes needed and it downloads onto the computer. Let me know. Keep up hope for the implants. Chuck’s uncle had that surgery and improved his hearing by 90%. He was basically deaf and now can hear without aids. Amazing.
Glad you’re home again, Scott, IV and all! I hope the tune up did what it was supposed to. You are amazing.
By the way, I think my dissertation defense will be in late April — probably the 25th. I guess I better finish the thing now…
Much love to the whole family.
Jeannie, Chuck, Evan, and Kathleen
Sarah said,
March 18, 2007 at 12:19 am
I got your message about IM, Martha, but I’m afraid I don’t know anything about it. We do use text messaging on our cell phones absolutely all the time. It’s so convenient - especially for situations where you can’t talk. The only downside is that they charge you per message, but we upgraded our plans to include more. I tend to keep my phone on vibrate most of the time. I’ve been in situations where I couldn’t here a phone ring, but I’ve never had my phone buzz and not felt it.
Kim Hull said,
March 18, 2007 at 2:55 am
Hey Martha I am sorry to hear about Scott’s hearing but I have used the relay system when I was at work and it really dose work
All Scott would have to do is dial in to them with his computer and then they would call the person for him and then talk for him and type back to him. It is a great way to talk to people that can’t hear. I would really look into it 
There is a 1-800 number that you call to call him and I think he just calls that same number with his computer I am sure you can look up info on the computer I think it is called MD relay. Hope you guys are ok and maybe if you are home next sat on the 24th maybe will will try to find a sitter and come down or if the girls are going to be home then we will just bring the kids with us 
Let us know and if it works with you guys we will make it happen 
Talk to you soon 
We love you guys and as always you are in our prayers!
Love,
Kim
Carol Krueger ( friend of Scott's) said,
March 19, 2007 at 5:54 pm
Hi Scott and Family,
Life is so much fun. Seems like more problems though then fun. Welcome home again Scott.
Again, I wish I didn’t have to deal with the problems on my own home front (believe me I am not far behind your). Being a nurse requires a lot many learnings. Signs is one of them. It’s not hard but please be patient as you learn. I have a friend who is deaf. She now lives in New York. I communicate with her all the time using MD relay service. So easy and so fast to use. Your talk as you would and the typist on the other end communicates it to the receiver. They type back and the typist speaks it out to you. It is a life saver. Try it you will love it.
Well hope the girls are fine and Martha getting alittle rest. We need some more pictures from home now. Spirits need to be lefted. Let’s see the old boy busy at home doing his work with a big smile on his face. By the way……………has your hair grown any?
Okay that’s all for now got a lot of mailing here to do. I will continue to pray along with many many others. Be good, rest, be patient and most of all share your love that is so deep within you. God bless.
Carol
morgana said,
March 19, 2007 at 11:37 pm
Hey kids…(all ya’s)
I use IM all the time….especially here at work…it’s awesome and really fast. if you have *any* questions at all…please feel free to call me and ask. here’s my cell: seven oh three four o eight four eight eight four.
I also used tty — i had people call me and i called people using it…it was nice when i worked at a specialist’s office.
also: Morgan of prechain knows sign langugage and may be able to point you in the right direction, should you need it.
also: more helpful projectiles from the peanut gallery….would a laptop or something help? maybe with an external keyboard so you could type on it? I may have an old one lying around the office here that would be crap for much else, but could definitely handle the typing thing…just a thought.
I”m thinking warm, wonderful thoughts for the two of you this spring…and i hope that something beautiful and wonderful and positive is growing in store for you both.
*HUUUUUUG*
Arlette, Roak, Jo, and Autumn said,
March 20, 2007 at 5:32 pm
I found a neat sign language website - http://commtechlab.msu.edu/SITES/ASLWEB/browser.htm
It has quicktime videos of all sorts of words indexed alphabetically.
I remember my Grandpa having a light that flashed when the phone rang. With that and call id, you could get in touch with anyone who phoned through TTY. There are lots of other neat assistive devices available online at places like
http://www.deafresources.com/shoppages/assistiveindex.shtml
They have flashing lights or vibrating things for fire alarms, doorbells or knocking, telephones, and alarm clocks.
Glad to hear that you are home again!
Arlette
Chris Greenwell said,
March 21, 2007 at 8:03 pm
Hello Scott,
It’s been a while. Quite a long while. Forgive me(?) I have lots of excuses… none of them good enough. Oh well.
How the hell are you? You’ve crossed my mind a few times in the past couple weeks so I thought I’d send you a note. I hope you’re getting better and I wish you all the best.
Best regards, Chris
Melanie Ott said,
March 22, 2007 at 7:01 pm
My Dear Scott and Martha,
I was getting out of the car this past weekend and asked Lance if he had seen you all or the girls around and he said “no”…and I thought, “why?” Then today Rich Williams sent around a synopsis of what’s been going on and reminded me of the website which I was grateful for. I have a friend who used to be an interpreter in sign language and I will ask if she can assist. I will check and get back to you. I know a little bit of sign and would be happy to give some basics and get you started……although I am rusty, will be back in town next week…if you want to chat…melanie.ott@nasa.gov, or melanie.ott@bezant.net.
talk to you soon, Mel
Ann Hull said,
March 22, 2007 at 10:47 pm
Alas, no books received from Scott during last evening’s visit by Ann and Steve. But, better, Scott looks great and gets around as if NOTHING WAS going on inside but the normal. And since he was tapped yesterday, he does feel better. And a visit from his Dad always is a pick-me-upper for Dad and Scott!!!!!!! Was great sharing and talking with Martha and Shannon and Erin (and their neighbors and speaking Spanish to some degree). An upside of “this liver thing” is we have more visits and pleasant times together! Praise God for all and for that new liver to come! Love,Ann
Steve Hull said,
March 26, 2007 at 1:47 pm
Sounds like you had a very full week end. Much more than I expected you to do. But then you only turn 43 once. now we are looking forward to celebrating 44. I hope your day was a happy as your update sounded. Sure beats sitting around the house. And God blessed you with a beautiful day to get out.
I too am a little concerned about the antibotic stop. But at the same time I hate what it is doing and will continue to do to your organs, not the musical ones. Maybe they will be able to cut it backl a little to stay pace with the infection and slow the damage. You lookmuch better with the little hair you have grown we don’t want to lose any of it. Love Dad
Melanie Ott said,
March 26, 2007 at 4:13 pm
Scott
Please check your GSFC email account for information I just sent to you. thanks Mel
Carol Krueger ( friend of Scott's) said,
March 27, 2007 at 6:39 pm
Scott, Martha and girls,
I just saw the picture of the girls in their pirate clothes, but I want to know who that good looking man was with them. All jokes aside, you looked pretty good there Scott. I would love to see some pictures of all of you from this past weekend in St. Mary’s. Weather was great, got you out and breathing the air out of a hospital and gave you lots of time with your lovely family. There will be many many many more days ahead of you to do things as a family.
Hang in there. We all Love you and pray for you all the time.
Send an e-mail once in while ckrueger@pop600.gsfc.nasa.gov or did you forget.
I am still working on the leave donor program for you. Hope a little helps you out.
Glad to see others from GSFC are e-mailing you. Go Goddard - Keep in touch with our Brother.
Carol
Carol Krueger ( friend of Scott's) said,
March 28, 2007 at 5:12 pm
Hi Scot,
I am so sorry for not wishing you a Happy 43rd Birthday. I see you had a lot of fun on your birthday. Enjoy everyday to it’s fullest. I owe you a Birthday cake when you are able to eat and enjoy it. St. Mary’s is a great place to visit and have fun. So much to see and do. Just need the time.
Martha, we love the pictures that you are able to send to us.
We really appreciate them. Keep them coming.
Enjoy yourself and have many many more wonderful Birthdays.
Love to you and the Family
Carol
Chris, (Scott's Cousin) said,
March 29, 2007 at 3:57 am
Scott, Glad to hear about all the great birthday celebration! Sorry I didn’t call! I’ll catch up with you soon! It’s nice to know you’re still older than me! ha!
Spring is in full swing here in the Carolinas! 86 today! Enough pollen to color the world yellow! Gotta love it!
When you mentioned Baba saying “…she wanted to see how it all turns out” I could see her saying it while grinning and giggling! haha.
We all wish you another great day! Love! Chris & the gang!
Isopel said,
March 29, 2007 at 9:10 pm
Happy belated Birthday! I didn’t know, but now that I do watch out next year…
I’m gonna be in town April 15th & 16th. Up for a visit?
email me if you get a chance: laura@cherny.com.
XOXO
Melanie Ott said,
March 29, 2007 at 10:14 pm
Hi Guys,
Scott, please check your GSFC account, I sent an email for both of you. Please print it. Thanks, Hugs Mel
Jim Horstman said,
March 30, 2007 at 1:45 pm
Happy Birthday ( a little late). Glad to see you got out with your family and friends for a day.
Steve Hull said,
April 3, 2007 at 12:00 am
Ok so now the old man has to learn the text thingey. I’ll get Adam to tery to teach me. After a year he got me to answer my phone messages. So probably by the time I get this scott will have a new liver. But I will give it a try. I guess this will mean that we need to get internet at home. Does that work with rotery dial ?
love you Dad.
Amanda said,
April 4, 2007 at 6:29 pm
Happy Belated Birthday! I had not realized when it was.
Something you might also want to look into is if you can use the internet to send text messages to the phone. It might help if one of you is out and one of you is at work or something.
If you haven’t found someone to teach you sign language yet, you might consider checking out the local high schools. Northwood is teaching ASL, and others might, too. Let us know if it would be helpful to ask the NHS ASL teacher for reccomendations on private lessons for your family.
Dave O'Bryan said,
April 5, 2007 at 2:29 am
Sxott,
Good to see you posting. I am glad things are stable. Hoping for that liver to show up soon.
Dave O (the other Dave O) Domhnall
David C said,
April 5, 2007 at 5:47 pm
Hello. I had a liver transplant at JHU Labor Day weekend, 1995, after battling PSC for 8 years. A few years ago, I was diagnosed with a re-occurrence of PSC, and have been dreading having to go through all this again. Reading your story and hearing how things have been going with you and your family has caused all sorts of emotions to run through me (and no, I am not going to try to write them all down here at one sitting!).
Stay strong and know there are people that you don’t even know who are checking up on this page and are sending prayers your way.
David (another NASA engineer guy)
Carol Krueger ( friend of Scott's) said,
April 9, 2007 at 11:36 am
Happy Easter Monday to the Hull Family.
Well, things aren’t much better at my house. Husband as developed a lot of problem. Not going into it though.
I am glad though the fever is gone for you. Glad you were home with your family for Easter. That was a great Basket full of love and joy. Didn’t need the candy and eggs.
Time is short so I just wanted to send my best and my love to you. Of course, the prays continue to flow. Keep that fever away and out of the hospital til the big day comes.
We Love you Scott,
Carol
Carol Krueger ( friend of Scott's) said,
April 13, 2007 at 11:51 am
Hi Scott,
It’s really nice to have you type an update once in a while. Gives Martha a rest.
When you are at work give me a call at 6X8811. I am in building 21 just across from you and I will buss over to see you man. I know your hearing is off but you can e-mail me or talk. My e-mail address is ckrueger@pop600.gsfc.nasa.gov
Hope to hear from you soon. Take care and don’t push yourselve to much.
Carol
P.S. I am going to Hawaii in May with my group over here for the AAS Conference and I will be doing an Outreach with my guest Astronaut. Wish you were going. A Tropical Island would be nice for you right now.
Sue Pachura said,
April 13, 2007 at 8:21 pm
Hadn’t heard from Jody in a while so thought I check up on you this way. Glad to hear things are good with you. We think of you often and what little troopers the girls are. Love to you all. Sue and Steve
Charles Holder said,
April 13, 2007 at 10:18 pm
You’re right, has been pretty quiet here lately (HOORAY!!!).
Its important for you to remember (that’as the big you - ALL of you) that even though things are quiet here on the messages board, Scott, you are all still very much in our thoughts and prayers.
Keep on keeping on.
David C. said,
April 16, 2007 at 5:11 pm
Hey Scott, it’s your fellow NASA engineer again. My last week or so has not been all that rosy, as the abdominal pain that they were hoping was from Fosamax sure doesn’t seem to be cooperating. Pretty sure it is just good ole PSC pain. Had hoped I’d go a few more years before getting to this point again.
Anyway, it is great to read that things are somewhat stable for you and your family right now. Guess, as I read what your wife write in the updates, silence is good when you know that when “the call” comes, it is going to be incredibly hectic.
I was very excited to read that you are going to be at the Apr. 24 event at JH.!! I am going to *try* really really hard to make it. Both my wife and I would love to meet you and your family, as we have tossed the idea of a living donor around (for my impending need of a second xplant) for a while before your website was brought to my attention. Unfortunately, I can’t guarantee my presence due to circumstances out of my control (I think you can relate to that one!)
So anyway, sitting here at my satellite engineering desk, I wanted to drop in and say hi to my comrade (in multiple ways)… even though we have never met. Believe me that my thoughts and prayers are with you. Rom 8:28 (that verse may be overused at times, but I believe that in situations like ours, it takes on a meaning of its own).
Feel free to email me sometime if you need to vent or whatever. I can empathize a lot with your struggles. (I had to put in my email address to insert this comment, though I do not know if you see the addresses as the admin of the website. Let me know!)
David
Jeannie said,
April 19, 2007 at 4:12 pm
Just wanted you to know we are all thinking about you — and look forward to seeing you and visiting a bit this weekend. We really miss you guys. Good news about the insurance. This must be a crazy time as you crave and enjoy a more normal life yet know the call is a lifeline and signals a return to chaos.
Happy Birthday, Erin — a day early.
Jeannie and family
Mary, "the evil twin", and the boys said,
April 22, 2007 at 5:13 pm
Happy double digits, Erin!! Sorry, we are late in our birthday wishes. Happy 10!! I am glad things are at least stable. Stable is good. Enjoy the good weather. Richard is having a female visitor today. I am so not ready for this.
Sarah said,
May 2, 2007 at 5:50 pm
Martha, you should so go to Sheep & Wool! You deserve it.
Hope to see you there.
Lauren ('Nea) said,
May 4, 2007 at 4:06 am
I’m still thinking about y’all. Happy belated birthday to Erin!
I’ll see you at Sheep and Wool, Martha!
Mary, "the Evil Twin", from Pittsburgh said,
May 4, 2007 at 1:54 pm
Please “baa” at some sheep, alpacas and angora rabbits (think “French Fry”, Joey’s rabbit) for me. I would love to go there with you. That sounds like so much fun. Relax knowing you have a cell phone (before you had to stay next to your phone and wait). Maybe this will inspire you to get back into weaving and playing with yarn. I am jealous.
Carol Krueger ( friend of Scott's) said,
May 8, 2007 at 3:19 pm
Hi Scott,
Glad to hear you are back to work some. Are you still in Bldg 6. I am in Bldg 21 now. Let’s get together sometime.
Glad to hear Martha got to go to the Sheep & Wool show. That’s a pretty important event. Being a knitter and crocheter, weave myself.
Did you get out today May 8th to see the Queen? Dressed in her bright yellow. I was so far back I really didn’t get to see to much so I came back to the office to finish my work.
Scott, How is Marcus doing these days. Good we hope.
Okay continue to hang in there. Hope a new liver arrives soon. God Bless and call me when you are at work.
Carol
Evan Webb said,
May 9, 2007 at 2:26 pm
Hey Scott, I’m finally getting in here to post. Hang in there buddy! I see that your efforts on the end of mission planning work are in the new NPR ( or NASA-STD, I forget which) so it looks like I’ll be doing another one on my new project! I’m looking forward to working with you on it. Take care.
Mary, "the evil twin", and the boys said,
May 13, 2007 at 11:09 pm
You did not give us the “sheep and wool” update. Was it good? Any other news? HAPPY MOTHER’S DAY, Martha (and all the other mothers who read this)!
Mary, "the Evil Twin", from Pittsburgh said,
May 15, 2007 at 2:03 pm
Thank you for the update. When you update, you REALLY like to type.
Martha, "Spare Parts" said,
May 15, 2007 at 9:13 pm
What can I say? I had a lot to say and it had been a while…
Martha
Shannon says “Chickenbutt”
Mary, "the Evil Twin", from Pittsburgh said,
May 16, 2007 at 6:14 pm
Shannon, do bruises and bad road rash count as “Chickenbutt”? bummer about your accident. (note: be careful about “multitasking”, practicing your flips while riding a bike is not a good idea). Hope you feel better soon. Did the bike survive? Since you’re not going to miss any schoolwork, it’s a pity you can’t come see us…
Jennifer Wiens said,
May 21, 2007 at 7:45 pm
hi guys, just a note to say i’m thinking of you all and hoping your summer is fun! aysha says hi too!
cousin Jenny
Mary, "the Evil Twin", from Pittsburgh said,
May 21, 2007 at 8:05 pm
Shannon, Martha, aren’t you paying for a cell phone for Shannon? She is a teenager. Most teenager are never without their phone except in the shower…. (usually, attached to their ear or thumb)
Martha, could you send me the girls’ email addresses?
Jeannie said,
May 22, 2007 at 5:19 pm
No more trips to the ER! My heart jumped when I read that news. Shannon…. we need to talk.
Thanks for the kind words, Martha. My graduation was yesterday so now it really feels like I have the PhD. I wore my dad’s robe — so he was with me in spirit. Kathleen has started calling me Queen Dr. Mommy. I don’t think it will last, but I’m enjoying it now!
I continue to be amazed by your stamina, Scott. Enjoy these beautiful spring days and your wonderful family.
Love to all,
Jeannie
Dave O'Bryan said,
May 26, 2007 at 5:40 am
Great news that Gallen/Scott is doing so much better. Have a great weekend.
Dave O Domhnall
Katie Townrow said,
May 27, 2007 at 9:57 pm
Scott, Martha-
How very good that news is. Both John and I are really pleased to hear it. We are off to England on Tuesday and so we won’t be able to keep track for a month but you will still be in our thoughts and prayers,(with thanksgiving!). I hope you have a good weekend and all continues on track.
Love,
Katie
Sarah said,
May 28, 2007 at 9:20 pm
Ed was on Cipro and it made him sick as a dog. Eating lots of yogurt really helped.
Sarah
Mary, "the Evil Twin", from Pittsburgh said,
May 29, 2007 at 8:43 pm
It’s Tuesday. Drum roll, please….
Jeannie said,
May 30, 2007 at 9:25 pm
We wish you the best with this new treatment plan. We are crossing our fingers, too.
Love to all,
Dr. J and family
Mary, "the evil twin" said,
May 31, 2007 at 3:54 pm
the circus & magician’s drum roll! please!
Little Sister, would you please e-mail me a list of all your family’s phone number’s & e-mail addresses?
Mary, "the evil twin" said,
May 31, 2007 at 3:55 pm
save the hangman’s drumroll for the students going to final days of classes and finals
Carol Krueger ( friend of Scott's) said,
June 4, 2007 at 5:34 pm
Hi Scott, Martha and Girls,
Sounds like you are doing better then the last time I was on here reading about your status.
I have been doing a lot of traveling for NASA. Just got back from AAS Conference in Honolulu, Hawaii. It was great. Hawaii is too much commerical though. Like walking the boardwalk at OC.
Keep up the good work. My prayers remain with you Scott.
Enjoy the Summer.
Carol
Arlette, Roak, Jo, and Autumn said,
June 4, 2007 at 8:00 pm
Good luck, we are hoping for you! Getting rid of that PICC line would be a fabulous thing!
Arlette
Mary, "the annoying twin" & Joey said,
June 6, 2007 at 5:52 am
Martha, Scott, your updates are starting to smell like two-week-damp Pensic garb…
Alice P said,
June 6, 2007 at 6:08 am
Dear Scott and Martha,
The miracle is taking longer than we expected but your latest news is heartening In FL we are praying for full restoration of all your faculties free of any pain. Martha, the woolie show sounds fascinating. I’m glad you were able to go.
Your kids are being normal kids and Dad is burying cable! Wonderful stuff of which life is made. God loves you all. (Ann’s sister in FL) Alice
nancyB said,
June 6, 2007 at 5:37 pm
IT is wonderful to read about such GREAT PROGRESS towards good health and recovery. we send continued prayers and intentions for more of the same…Scott! STAY OUT OF THE RIVER! just because you no longer have the picc line does NOT mean it is ok to be in that water.. give your recovering immune system a boost by not exposing it to more ilchy stuff…
My family was honored to be present at a very special wedding 17 years ago that took place in a magickal glen that seems to have been created just for the occassion… After a wonderful ceremony, we went to mom’s house for a kewl reception .. I remember those HUGE strawberries and the chocholate! Yummy! It was great to share that special day with you and so wonderful to celebrate this year.. we look forward to many more years of “normal”..
take care,
nancyB and the rest of the Barry family
Amanda said,
June 6, 2007 at 9:52 pm
On behalf of my birthday, I want you and yours to have a happy day with no surprises, no visits to the hospital and no weird additional symptoms.
Happy Anniversary and Happy Birthday to those for which each wish applies.
Mary, "the Evil Twin", from Pittsburgh said,
June 7, 2007 at 8:38 pm
Happy Anniversary, Scott & Martha! Do I need to don pink hiking boots, a pink dress and a pink baseball cap in honor of the weekend? (I would prefer dark chocolate covered strawberries…
Happy Birthday, Shannon! Sorry we are going to miss it. The boys are done with school as of noon Friday (Richard has 20 minutes this Tuesday). However, we can’t come because of 4-H stuff and Grandma’s knee surgery the following week (some of us are coming then). Did you know Joey is going to Montana next week?
gareth said,
June 7, 2007 at 10:09 pm
Happy Anniversary! Reading through your blog from the last month, and hearing about the summer weather, brought so many fond memories back for me. It’s really hard to believe that I’ve been away from Maryland for nearly three seasons. London is warm too, its always an exciting city in the summer.
The updates over the last weeks are very encouraging; Scott I’ll keep in touch by text message. Hi to all the Hull family, I hope you all have a great summer.
Gareth
Mary, "the evil twin", and the boys said,
June 8, 2007 at 7:01 am
Martha, your first comment. Are you trying to tell us something?
Scott said,
June 8, 2007 at 8:20 am
Mary, GOOD LORD NO!!! No more babies in this house for at least another 20 years (when I finally let Shannon start to date boys).
Mary, "the Evil Twin", from Pittsburgh said,
June 11, 2007 at 8:00 pm
Scott, Martha, glad you had a good weekend. Scott, maybe you should kayak to work.
Shannon, HAPPY 14th! two years until driving Daddy’s car! Now is time to drive Daddy crazy with cell phones, makeup and BOYS (even it they don’t interest you, it’s entertaining to fluster Daddies). Work hard and do your chores. I will see you and Erin next week. Aunt Mary
nancyB said,
June 13, 2007 at 5:27 pm
SCOTT!
It is good that you had such a GREAT weekend! a nice way to CELEBRATE so many things!
SCOTT: you are a WALKING, MIRACLE and not that other very negative thougt! You are ALIVE, the infection seems to be behaving and disappearing? ,the open wound is healed, the PICC line is OUT, you are working, you are able to work on projects with your daughters, you are able to leave the house and stay for a while at a place I know that you love.. SEEMS to me that HEALING and RECOVERY are occurring… think on the positives so that they blossom and block out any negatives that might think of returning…
be grateful..
nancyB
Charles Holder said,
June 14, 2007 at 9:50 pm
RIGHT ON! It was fantastic to hear about the trip. Mile and a half?! That’s amazing and sounds like you had a blast.
And I second what nancyB was saying … POSITIVES! That’s what we’re all still thinking and sending your way.
Happy Father’s Day to you and to Marcus! (and all you other Dad’s out there)
Jennifer Wiens said,
June 18, 2007 at 12:00 pm
hey guys! i was off on the appalachian trail for a few weeks, so just now catching up…glad to hear there’s some good news, and that scott is getting stronger!
and hearing about the cabin makes me remember great times with you all.
take care, and scott stay well!
Jenny
Mary, "the Evil Twin", from Pittsburgh said,
June 23, 2007 at 12:10 am
Hi, Jenny, hope you enjoyed your hike.
Did any one else notice the smell of really-old-gym-uniform-in-locker? or is that Martha’s updates getting a little old?
Mary, "the Evil Twin", from Pittsburgh said,
July 10, 2007 at 1:51 am
2 week old wet, moldy, stinky feet. Must be pensic, or is it Martha’s updates…?
Mary, "the Evil Twin", from Pittsburgh said,
July 10, 2007 at 1:53 am
Does anyone else notice that that the date/time stamp on the updates are off by 9hours? it is really only 4:52pm on the July 9
scotthull said,
July 12, 2007 at 8:30 pm
Mary, teh time stamps have always been off by several hours. I thought it was stamped in GMT, but that should only be off by 4 hours (5 in the winter). Nine hours is odd, but then what about me ISN’T odd?
And look for an update very soon. We had little to say, so we didn’t say it. Maybe if things continue to go well it will be time to close up this shop at the one year mark. Any comments?
Arlette, Roak, Jo, and Autumn said,
July 12, 2007 at 9:16 pm
I do find it a bit of a relief to check and see nothing new - it means things aren’t getting any worse!
Is there any chance you will be making it to Pennsic? or is that not possible this year?
keith (friend of Scott's) evans said,
July 19, 2007 at 12:06 am
Hi Scott,
Sorry that I haven’t been here in a while and I have missed a lot. At the risk of sounding like a religious fanatic, I’ll write this anyway.
I once told you that I was a Nichiren Buddhist who chants Nam-myoho-renge-kyo and you said that you were more into the Celtic stuff.
The most important thing in religion is does it answer your prayers. Nam-myoho-renge-kyo means Devotion to the Mystic Law of Cause and Effect and it’s Teachings or Sound. But it means more than that. Go to http://www.sgi-usa.org for more info.
What’s important is getting actual proof - that things that you chant/pray about actually occur. I would strongly encourage you to try to say Nam-myoho-renge-kyo.
Nam as in Viet Nam
Myoho as in me-yoh-ho
Renge as in wren-gay
Kyo as in key-oh
Our bodies, which get sick, can also cure itself. It’s about manifesting one’s Buddha-nature (which we all possess). This gets us in rhythm with everything else.
Try to chant as much as possible about becoming healthy again so that you can show others how great chanting Nam-myoho-renge-kyo really is!
keith
Jim Horstman said,
July 24, 2007 at 7:45 am
To reiterate what was writen by Arlette et al, it is wonderful to see the current notes to be about everyday life and family. It is a relief to see that your condition seems to be stable enough to be planning for Pennsic. Hope to see you both at the war this year.
Martha, "Spare Parts" said,
July 25, 2007 at 5:56 am
I just wanted to assure everyone, that although we are not updating the website very often (there has not been much to tell!), we are reading, and enjoying your comments! Thank you everyone for sending them!
Martha
Mary, "the Evil Twin", from Pittsburgh said,
July 27, 2007 at 12:04 am
I am so sorry to hear about the joint issue. I hope it sounds worse than it is, because it sounds bad. Fill us in on Friday.
I am happy to hear younz (you plural in Pittsburghese) are enjoying your Harry Potter. Younz need a good distraction. I hear even Erin has been reading. How long and when are younz doing the Pensic thing?
Va/Amber said,
July 28, 2007 at 11:43 pm
Hey guys- just checked in. Sorry to hear about the hip/joint issue. That sucks ass! I can’t imagine what it’s like for youse guys living through it, cause it’s overwhelming for me just reading about it occasionally.
I’m trying to focus on the good parts & really, really looking forward to seeing the whole family at Pennsic! Hope we can have you as long as possible.
Rest up for War everyone & remember: we all look best in plaid!
Blessings for all of your journeys
~Va/amber
Jeannie said,
July 31, 2007 at 2:20 am
I hope you make it to Pennsic — that is good medicine for you all. We miss you and hope to welcome you to Alexandria soon. We are still unpacking boxes and trying to get organized. Kathleen had a great time in Corning, NY with her grandmother at the Elderhostel. We’ll tune in to the webcast at 9 tonight.
Much love,
Jeannie and family
Marian said,
August 3, 2007 at 1:23 pm
Scott and Martha;
As you know, Alec has a similar disease, but in a childhood form, with Legg Perthes. He had the surgery where holes were drilled into the bone to allow air and blood to circulate and try to help the bone grown. They drilled two holes into his hip, during his surgery to place an exfixator into the bones (which helped to lengthen the bone and also helped to get the bones to grow). The holes really did help the bone grow, and four months after the surgery, the xrays clearly showed new growth. 3 years later, we are down to yearly appointments, instead of monthly, and his bones appear to be on an appropriate path. Like Scott, he may have arthritis in his hips when he is older, and he may need hip replacements, but the other thing his doctors told him was to religiously do daily exercises, and that that would help keep blood flowing and hopefully prevent the need for hip replacements. Scott’s case is obviously different, but potentially, such exercises (stretching, mostly) will help. We used the Rubin Institute at Sinai hospital in Baltimore, with Dr. Paley and Dr. Standard. Paley is the world expert in Alec’s rare disease, and the Rubin Institute is the foremost hospital for such bone issues, with people coming from around the world (and believe me, we see and hear them in the waiting room!!!). Paley is also associated with Hopkins, so if you need someone truly good, I would recommend these doctors. You have our best wishes and you know you can contact us with questions!
Dave O'Bryan said,
August 13, 2007 at 7:47 am
Gallen,
It was great to see you at Pennsic. The clan was thrilled at how much and well you enjoyed being there.
You brightened our experience by your presence.
Dave O Domhnall
Marcus said,
August 14, 2007 at 4:43 pm
Scott,
Hey there bud! Glad to hear Pennsic was such a good time. It sounds like there was more healing of the soul than anything else. A great place to recharge those batteries! I was sorry to read of the nagging pains that seem to continue to return. Hopefully the PT will offer some sort of relief. Pass along hugs & kisses to Martha & the girls and continue to hang in there. One day at a time….
Mary, "the Evil Twin", from Pittsburgh said,
August 14, 2007 at 7:18 pm
thinking about you all the time. Love to all four of you. Mary
Arlette, Roak, Jo, and Autumn said,
August 14, 2007 at 9:22 pm
Hi all,
It was great to see and chat with you at Pennsic - Shannon looks so grown-up now! We are all amazed at your fabulous lip-reading abilities (leave it to Gallen to learn something faster than anyone would expect). Kaylah almost didn’t believe that you couldn’t hear her! We were very lucky that Thorgrim was able to make it down on the last Friday, and was looking pretty good. My fingers are crossed for a longer trip to Pennsic for both of you next year. I really hope that the next round of surgeries goes well, and that the physio can get the blood flowing without causing you too much extra pain. I am tremendously impressed by your ability to stay positive when everything hurts - I know it can really start to drag on you after a while. It was wonderful to see you.
Love,
Arlette
Jennifer Wiens said,
August 15, 2007 at 7:49 am
hey guys, glad to hear pennsic was fun, for even the short time you could be there.
i am heading out to the DC area, so hope to see you all sometime soon in the coming weeks!
jennifer
Jeannie said,
August 16, 2007 at 7:49 am
Thanks for the updates in your voice, Scott. The first person narrative is a powerful way to communicate. That doesn’t mean we don’t appreciate Martha’s efforts because we do!! It’s also fun to have the girls write sometimes.
We really miss you all and are surprised to be at the halfway point in August. Please know we are thinking about you and pulling for you. We will be in touch about a visit.
Much love, Jeannie, Chuck, Evan, Kathleen and Bella
Jeannie said,
August 16, 2007 at 7:50 am
I just noticed this submission page had the wrong email for me. Be sure to use my gmail account as the umd.edu account is no longer available to me.
Cheers,
Jeannie
Mary, "the Evil Twin", from Pittsburgh said,
August 17, 2007 at 11:51 pm
Happy Birthday, Little Sis! Wow, 29! (I stopped having B-day’s years ago and now only acknowledge Martha’s Birthday).
Catherine aka Niniane said,
August 18, 2007 at 12:20 am
Lost email contact from dahlraidia back in October & my efforts to change my subscribed email have failed. Doesn’t mean I haven’t thought of you. I do, and keep you in my prayers. Seems that they haven’t been working. Will redouble my efforts. Baby Anika is 1 yr 2 months — face looks like a battering ram between tumbles & fingernails I can’t keep cut short enough. Sweet girl, into everything. Love to you & family - Nin/Cat
Charles Holder said,
August 18, 2007 at 8:58 pm
Scott, Glad you were able to make it to Pensic. And that it was as therapeutic as it sounds, mentally, emotionally, and (okay maybe not so much) physically. Did Shannon sneak a dive in the lake to look for leeches? Its gotta be great visibility in there - you figure 6 - 9 inches?
Stay positive (you seem to have a knack for that, even thru the pain and frustration), and get out and enjoy this nice break in the weather we’re having.
-Cea
Arlette, Roak, Jo, and Autumn said,
August 24, 2007 at 7:32 pm
Hi guys! Sounds like a fun weekend!
Here is a comic for Shannon before she heads back to school. It doesn’t make much sense to me, but I’m sure she will get it -
http://www.wondermark.com/d/037.html
Arlette
Mary, "the Evil Twin", from Pittsburgh said,
August 24, 2007 at 8:14 pm
Does Richard’s 10 seconds count on a single ski count? Richard is still pretty sore from tubing and skiing. He also twisted his knee badly. Thank goodness he is not playing soccer this year. He started 10th grade today. Hopefully, Shannon will be able to work on her homework more indepentently this year.
lanea said,
August 24, 2007 at 10:56 pm
It was good to see you all at Pennsic, no matter how briefly.
In answer to your question, Scott: the Irish for “child” is páiste (pronounced like paws-chuh), and the plural is páistí / na páistí; (that’s “children” and “the children”–pronounced nah paws-chee).
Heal those hips, friend. And you wonderful Hulls keep taking care of each other. I’ll go kick the BBC.
Janet Beale said,
September 4, 2007 at 7:55 am
Does anyone know yet when the Discovery Channel here will air the documentary of Scott & Marcus?
Scott said,
September 4, 2007 at 5:23 pm
I tried to send them an e-mail requesting the date, but all I got back was an automated reply saying to check their schedule. I will try again, with some other ideas.
nancyB said,
September 5, 2007 at 4:49 pm
HAPPY reBIRTHDAY! what an incredible miracle today is for all of you! I am sure there were many days when you questioned what has happened this year that has not turned out as expected. YOU ARE ALIVE! ..We are given challenges for a reason and it often takes a long time to see through the weeds and learn the lessons… keep up the physical activity ; STAY OUT OF THE RIVER! .. “every step is a step of healing; one foot at a time”
glad to see your sense of humor is running amuck again…
healing hugs, nancyB and the rest of the gang
Charles Holder said,
September 5, 2007 at 8:54 pm
Happy LIVErBirthday Scott!
(no…I’m over here…look farther to your left…there!)
So…naked goats AND wild hogs, eh? Whachubinsippinson? Oh yeah, those perscripchun coctails.
Really though, glad to hear that you were up for all that work. Congratulations on projects done! And happy that the eye seems to be on the mend EMBRACE YOUR INNER NERD! Goggles are cool - just ask the Mythbuster crew.
Laterz,
Charles
Marcus said,
September 6, 2007 at 12:56 am
Hey there brother!
Glad to hear no major injuries due to you home improvement projects. So, good luck on the procedure tomorrow. I hope you will not be in the hospital too long. I have my hernia surgery next month (Oct 3rd) at Hopkins, so once we are both feeling better maybe we’ll be able to link up somewhere. If not in November then DEFINATLEY for Christmas! Everyone says hi and pass along hugs to Martha & the girls for us.
Take care!
Marcus
Mary, "the Evil Twin", from Pittsburgh said,
September 6, 2007 at 11:06 pm
Happy New Liver Day! Hope your new surgery goes really well.
I have a thought; hum. All the extreme problems and complications Scott has had in the last year, from the infections, to the hip thing, to the hearing loss, to the eye damage while weeding: Is he cursed or really, really lucky?
nancyB said,
September 7, 2007 at 9:01 pm
Hope all is well for coming home today..Glad procedure went well. Please give us an update over the weekend ….. healing hugs to all, nancyB and gang
Dave O'Bryan said,
September 8, 2007 at 12:56 am
Glad to hear that the procedure went well. Hope to see you home soon.
PS Goggles really are cool in a nerdy black framed glasses sort of way.
gareth morrow said,
September 11, 2007 at 5:05 pm
dear scott, martha and the rest of the hull family,
so great to hear how you are doing! i know its still up and down and a tough year, but you’ve all coped so well. hard to believe thats its over a year since we met. have you had a chance to see the film yet? i thought it was very good all round. how are the girls doing? back to school now?
im working on the uk version of the apprentice now, enjoying london but missing the u.s. sometimes! do write back soon,
gareth
Dorothy said,
September 13, 2007 at 8:16 am
Martha, Scott, and Loved Ones — I’m so glad to know the surgery went well.
I wasn’t sure of the exact date, so I’ve been praying all week! Take Care!
Dorothy
nancyB said,
September 13, 2007 at 3:41 pm
INQUIRING MINDS WANT TO KNOW: R U HOME?????? hope all is improving already… an update would be greatly appreciated …
nancyB
Jeannie said,
September 16, 2007 at 4:42 am
I continue to be amazed at how you all manage the regular demands of life (going back to school, buying groceries, cooking, etc.) and the extra demands that have come your way. Poison Ivy? That’s just not fair!! We really miss you all but seem to be consumed with life’s regular demands to make it up to Columbia. Please know you are in our hearts and thoughts and we WILL figure out a way to connect soon.
Be well,
Jeannie, Chuck, Evan, Kathleen, and Bella
Arlette, Roak, Jo, and Autumn said,
September 17, 2007 at 6:31 pm
I have a thought f