Why Scott needs a new liver
August 18, 2006 at 8:18 pm (Scott's disease)
Scott Hull has a rare disease called PSC (very long name that won’t mean much unless you are a doctor). Basically, over time the bile ducts leaving his liver are squeezed closed which causes fluids to back up into the liver and evenutally, cirrhosis (liver damage). This is not caused by drugs, alcohol, or anything else he did. Although the symptoms are treatable eventually it will get worse, and the only long term cure is a liver transplant. To make matters worse, there is a 15% increase in the chance of liver cancer - which also goes back to normal with the transplant. (If he does get the cancer, the chances of getting the transplant before it spreads are unlikely). - Martha (Scott’s wife)
Martha said,
August 18, 2006 at 8:18 pm
Hi, I hope folks are reading these comments. I want lots of stupid and silly comments!! - Martha
Pete Salerno said,
August 28, 2006 at 12:26 pm
Hang in there! The folks at JHH are the best in the bussiness. I sure hope so because they’re going to do my pancreas/kidney transplant sometime, soon I hope. Good luck on your journey from a fellow traveller. Pete
P.S. Sorry Martha, not silly at all and only kind of stupid.
Joy Nehmsmann said,
September 1, 2006 at 1:43 pm
We’ll be praying for all of you.
And, according to a little research I did (I should have been a doctor and not just a transcriptionist!), the whole situation could be related to an immune complex that is part of Scott’s physiology. So your comment about it not being caused by alcohol, drugs, or anything else he did is right on the money.
May God bless Martha, Scott, Marcus, Pete, and all of their friends and families with peace and good health!
Joy (FYI: I’m the wife of John’s oldest nephew)
Carol A Krueger & Bonnie said,
September 7, 2006 at 12:35 am
First comment to Martha. You are the braveist of the brave. You have gone thru a lot present, past and in the future. Now is the time to take care of Martha. Scott is coming along beautifully and has a lot of help there in the hospital helping him. You rest and eat. Scott needs you when he comes home and so do those girls.
Second comment goes out to Scott. Who at this time could care less about comments and more about getting out of there. Scott you know I love you as a close friend. When reading Martha’s update the tears flowed down my cheeks. I am so glad it is over at least the worst part. From here on out rest and get well. Everyone at my church and most of all everyone at Goddard have been praying and thinking and reading about you. This Blog is the best communications that was invented. Though hard on Martha. By the time you get around to reading all the comments and cards you will be back to work and living a normal life again. You are one strong man and I am proud to be your friend.
Third Comment goes to Marcus. Without your love and kindness towards your cousins all this might not have happen. You are a strong beautiful man and I alson included you in my Church prays. Everyone was praying for you too. Just keep up the good work and come home now. From me to you THANK YOU for helping a dear sweet friend have a chance in life again.
And to everyone else that has been there for the two family’s GOD BLESS YOU ALL.
Scott my famous words to you remember………”Beam me up Scottie”. Well you have beamed me up with your courage and your drive. GOD BLESS YOU.
Robin Mauk said,
January 3, 2008 at 1:48 am
Scott,
I have been thinking about you. I hope for the best. If you or your family needs anything. Let me know. I have put your Christmas Card with the family in a prominent spot in my office. We all are hoping for your recovery!
Robin Mauk said,
March 31, 2008 at 10:07 pm
Martha and Scott,
My cousin and his wife cousin live in Memphis. Karen Mallow would like to help you out. Please call (30-286-2371) or email me and I will give you the contact information. With the exception of the week of April 17 through April 25 or so(Passover week), she can probably put you up.
You are all in my thoughts and prayers.
Robin
eslam ragab a muslim from egypt said,
April 14, 2008 at 2:09 am
i hope you find a suitable donor very soon and your husbund be ok
Dan said,
May 21, 2008 at 5:29 am
Hope all is well you are in my thoughts!
boxer.haven said,
May 22, 2008 at 8:30 pm
No news from you all is good news. Have a good holiday and say Hi too the girls.Did Shannon get her message . Grand ma puppy & me.
boxer.haven said,
June 3, 2008 at 11:14 pm
Guess YOUR still around. Sent you some packages. Have a happy anniversary and wish Shannon a happy birthday for us. Love and kisses;Grandma puppy & Papa John
Shannon said,
June 20, 2008 at 10:54 am
You can do it Scott I feel so sorry for you. I would so give you my liver if I could and I don’t even know you.
Shannon said,
June 20, 2008 at 10:57 am
I realy feel 4 you man get well soon Scott. I hope that your life will be real fun, happy and full of smiles. Goodluck xoxo
Em-Dawg!! said,
June 20, 2008 at 11:01 am
hey luvy wishin you the best and hope this helps you when ur feelin down you are inspirational man! to bad i cant give u my liver. by the way the pic on this page is hot!
lots lots lots lots lots lots and lots of luv
EMMA DOWDELL
xxx
Shannon said,
June 20, 2008 at 11:06 am
Hey Scott it’s me again Shannon G. I’m like addicted to this site. I just luv reading about your progress. I’m only 13 and I’m in health in fact i’m not supposed to be on this site….. but WHO CARES! I just have to check up on you dude. Heres a little thing to keep you goin: SMILE AND THE WORLD SMILES WITH YOU CRY AND YOU CRY ALONE! I hope you like it it’s one of my favs. xoxo keep strong!
Em-Dawg said,
June 20, 2008 at 11:07 am
hey again i just thought i better tell you that this isnt realy my e-mail address its my friend shannons but you can send her my stuff anyway.
Em-Dawg said,
June 20, 2008 at 11:14 am
hey sending more happy stuff for you to read
um…………mmmm….. cant think of anything to say but.
……..be happy! and keep smiling!!!